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"Better Living with Non-memory-led Dementia": protocol for a feasibility randomised controlled trial of a web-based caregiver educational programme.
Suárez-González A, John A, Brotherhood E, Camic PM, McKee-Jackson R, Melville M, Sullivan MP, Tudor-Edwards R, Windle G, Crutch S, Hoare Z, Stott J; Rare Dementia Support Impact team. Suárez-González A, et al. Among authors: mckee jackson r. Pilot Feasibility Stud. 2023 Oct 11;9(1):172. doi: 10.1186/s40814-023-01403-1. Pilot Feasibility Stud. 2023. PMID: 37821924 Free PMC article.
Protocol for the Rare Dementia Support Impact study: RDS Impact.
Brotherhood EV, Stott J, Windle G, Barker S, Culley S, Harding E, Camic PM, Caufield M, Ezeofor V, Hoare Z, McKee-Jackson R, Roberts J, Sharp R, Suarez-Gonzalez A, Sullivan MP, Tudor Edwards R, Walton J, Waddington C, Winrow E, Crutch SJ. Brotherhood EV, et al. Among authors: mckee jackson r. Int J Geriatr Psychiatry. 2020 Aug;35(8):833-841. doi: 10.1002/gps.5253. Epub 2020 Feb 17. Int J Geriatr Psychiatry. 2020. PMID: 31876030 Clinical Trial.
The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation.
Waddington C, Harding E, Brotherhood EV, Davies Abbott I, Barker S, Camic PM, Ezeofor V, Gardner H, Grillo A, Hardy C, Hoare Z, McKee-Jackson R, Moore K, O'Hara T, Roberts J, Rossi-Harries S, Suarez-Gonzalez A, Sullivan MP, Edwards RT, Van Der Byl Williams M, Walton J, Willoughby A, Windle G, Winrow E, Wood O, Zimmermann N, Crutch SJ, Stott J. Waddington C, et al. Among authors: mckee jackson r. JMIR Res Protoc. 2022 Jul 20;11(7):e35376. doi: 10.2196/35376. JMIR Res Protoc. 2022. PMID: 35857375 Free PMC article.
Peer support for people living with rare or young onset dementia: An integrative review.
Sullivan MP, Williams V, Grillo A, McKee-Jackson R, Camic PM, Windle G, Stott J, Brotherhood E, Crutch SJ; Rare Dementia Support (RDS) research team. Sullivan MP, et al. Among authors: mckee jackson r. Dementia (London). 2022 Nov;21(8):2700-2726. doi: 10.1177/14713012221126368. Epub 2022 Sep 16. Dementia (London). 2022. PMID: 36114712 Free PMC article. Review.
A mixed methods evaluation of a program exploring predeath grief and loss for carers of people with rarer dementias.
Stevens-Neck R, Walton J, Alterkawi S, Brotherhood EV, Camic PM, Crutch SJ, Gerritzen EV, Harding E, McKee-Jackson R, Rossi-Harries S, Street RE, van der Byl Williams M, Waddington C, Wood O, Moore KJ. Stevens-Neck R, et al. Among authors: mckee jackson r. Int Psychogeriatr. 2023 Apr 4:1-12. doi: 10.1017/S1041610223000236. Online ahead of print. Int Psychogeriatr. 2023. PMID: 37128845
Preparatory planning framework for Created Out of Mind: Shaping perceptions of dementia through art and science.
Brotherhood E, Ball P, Camic PM, Evans C, Fox N, Murphy C, Walsh F, West J, Windle G, Billiald S, Firth N, Harding E, Harrison C, Holloway C, Howard S, McKee-Jackson R, Jones E, Junghaus J, Martin H, Nolan K, Rollins B, Shapiro L, Shapiro L, Twigg J, van Leeuwen J, Walton J, Warren J, Wray S, Yong K, Zeilig H, Crutch S. Brotherhood E, et al. Among authors: mckee jackson r. Wellcome Open Res. 2017 Nov 6;2:108. doi: 10.12688/wellcomeopenres.12773.1. eCollection 2017. Wellcome Open Res. 2017. PMID: 29387805 Free PMC article.
A mixed methods evaluation of a program exploring predeath grief and loss for carers of people with rarer dementias - CORRIGENDUM.
Stevens-Neck R, Walton J, Alterkawi S, Brotherhood EV, Camic PM, Crutch SJ, Gerritzen EV, Harding E, McKee-Jackson R, Rossi-Harries S, Street RE, van der Byl Williams M, Waddington C, Wood O, Moore KJ. Stevens-Neck R, et al. Among authors: mckee jackson r. Int Psychogeriatr. 2023 Dec;35(12):751. doi: 10.1017/S1041610223000406. Epub 2023 May 2. Int Psychogeriatr. 2023. PMID: 37129075 No abstract available.
'Misdiagnosed and Misunderstood': Insights into Rarer Forms of Dementia through a Stepwise Approach to Co-Constructed Research Poetry.
Camic PM, Sullivan MP, Harding E, Gould M, Wilson L, Rossi-Harries S, Grillo A, McKee-Jackson R, Cox SM, Stott J, Brotherhood EV, Windle G, Crutch SJ. Camic PM, et al. Among authors: mckee jackson r. Healthcare (Basel). 2024 Feb 17;12(4):485. doi: 10.3390/healthcare12040485. Healthcare (Basel). 2024. PMID: 38391860 Free PMC article.