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A BEAT-PCD consensus statement: a core outcome set for pulmonary disease interventions in primary ciliary dyskinesia.
ERJ Open Res. 2024 Jan 8;10(1):00115-2023. doi: 10.1183/23120541.00115-2023. eCollection 2024 Jan.
ERJ Open Res. 2024.
PMID: 38196895
Free PMC article.
The disease-specific clinical trial network for primary ciliary dyskinesia: PCD-CTN.
Raidt J, Maitre B, Pennekamp P, Altenburg J, Anagnostopoulou P, Armengot M, Bloemsma LD, Boon M, Borrelli M, Brinkmann F, Carr SB, Carroll MP, Castillo-Corullón S, Coste A, Cutrera R, Dehlink E, Destouches DMS, Di Cicco ME, Dixon L, Emiralioglu N, Erdem Eralp E, Haarman EG, Hogg C, Karadag B, Kobbernagel HE, Lorent N, Mall MA, Marthin JK, Martinu V, Narayanan M, Ozcelik U, Peckham D, Pifferi M, Pohunek P, Polverino E, Range S, Ringshausen FC, Robson E, Roehmel J, Rovira-Amigo S, Santamaria F, Schlegtendal A, Szépfalusi Z, Tempels P, Thouvenin G, Ullmann N, Walker WT, Wetzke M, Yiallouros P, Omran H, Nielsen KG.
Raidt J, et al. Among authors: kobbernagel he.
ERJ Open Res. 2022 Aug 15;8(3):00139-2022. doi: 10.1183/23120541.00139-2022. eCollection 2022 Jul.
ERJ Open Res. 2022.
PMID: 35983540
Free PMC article.
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Efficacy and safety of azithromycin maintenance therapy in primary ciliary dyskinesia (BESTCILIA): a multicentre, double-blind, randomised, placebo-controlled phase 3 trial.
Kobbernagel HE, Buchvald FF, Haarman EG, Casaulta C, Collins SA, Hogg C, Kuehni CE, Lucas JS, Moser CE, Quittner AL, Raidt J, Rosthøj S, Sørensen AL, Thomsen K, Werner C, Omran H, Nielsen KG.
Kobbernagel HE, et al.
Lancet Respir Med. 2020 May;8(5):493-505. doi: 10.1016/S2213-2600(20)30058-8.
Lancet Respir Med. 2020.
PMID: 32380069
Clinical Trial.
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One-year evolution and variability in multiple-breath washout indices in children and young adults with primary ciliary dyskinesia.
Kobbernagel HE, Green K, Ring AM, Buchvald FF, Rosthøj S, Gustafsson PM, Nielsen KG.
Kobbernagel HE, et al.
Eur Clin Respir J. 2019 Mar 26;6(1):1591841. doi: 10.1080/20018525.2019.1591841. eCollection 2019.
Eur Clin Respir J. 2019.
PMID: 30949311
Free PMC article.
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Hypertonic saline in patients with primary ciliary dyskinesia: on the road to evidence-based treatment for a rare lung disease.
Kuehni CE, Goutaki M, Kobbernagel HE.
Kuehni CE, et al. Among authors: kobbernagel he.
Eur Respir J. 2017 Feb 23;49(2):1602514. doi: 10.1183/13993003.02514-2016. Print 2017 Feb.
Eur Respir J. 2017.
PMID: 28232418
Free article.
No abstract available.
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Study protocol, rationale and recruitment in a European multi-centre randomized controlled trial to determine the efficacy and safety of azithromycin maintenance therapy for 6 months in primary ciliary dyskinesia.
Kobbernagel HE, Buchvald FF, Haarman EG, Casaulta C, Collins SA, Hogg C, Kuehni CE, Lucas JS, Omran H, Quittner AL, Werner C, Nielsen KG.
Kobbernagel HE, et al.
BMC Pulm Med. 2016 Jul 22;16(1):104. doi: 10.1186/s12890-016-0261-x.
BMC Pulm Med. 2016.
PMID: 27450411
Free PMC article.
Clinical Trial.
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Hypoxic challenge test applied to healthy children: influence of body positions and exertion on pulse oximetric saturation.
Kobbernagel HE, Nielsen KG, Hanel B.
Kobbernagel HE, et al.
Arch Dis Child. 2013 Aug;98(8):602-6. doi: 10.1136/archdischild-2012-302763. Epub 2013 Jun 28.
Arch Dis Child. 2013.
PMID: 23814087
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