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Desiderata for digital consent in genomic research.
Parra-Calderón CL, Kaye J, Moreno-Conde A, Teare H, Nuñez-Benjumea F. Parra-Calderón CL, et al. Among authors: kaye j. J Community Genet. 2018 Apr;9(2):191-194. doi: 10.1007/s12687-017-0355-z. Epub 2018 Jan 23. J Community Genet. 2018. PMID: 29363051 Free PMC article.
The RUDY study platform - a novel approach to patient driven research in rare musculoskeletal diseases.
Javaid MK, Forestier-Zhang L, Watts L, Turner A, Ponte C, Teare H, Gray D, Gray N, Popert R, Hogg J, Barrett J, Pinedo-Villanueva R, Cooper C, Eastell R, Bishop N, Luqmani R, Wordsworth P, Kaye J. Javaid MK, et al. Among authors: kaye j. Orphanet J Rare Dis. 2016 Nov 8;11(1):150. doi: 10.1186/s13023-016-0528-6. Orphanet J Rare Dis. 2016. PMID: 27825362 Free PMC article.
Health-related quality of life and a cost-utility simulation of adults in the UK with osteogenesis imperfecta, X-linked hypophosphatemia and fibrous dysplasia.
Forestier-Zhang L, Watts L, Turner A, Teare H, Kaye J, Barrett J, Cooper C, Eastell R, Wordsworth P, Javaid MK, Pinedo-Villanueva R. Forestier-Zhang L, et al. Among authors: kaye j. Orphanet J Rare Dis. 2016 Nov 28;11(1):160. doi: 10.1186/s13023-016-0538-4. Orphanet J Rare Dis. 2016. PMID: 27894323 Free PMC article.
The RUDY study: using digital technologies to enable a research partnership.
Teare HJA, Hogg J, Kaye J, Luqmani R, Rush E, Turner A, Watts L, Williams M, Javaid MK. Teare HJA, et al. Among authors: kaye j. Eur J Hum Genet. 2017 Jun;25(7):816-822. doi: 10.1038/ejhg.2017.57. Epub 2017 Apr 26. Eur J Hum Genet. 2017. PMID: 28443622 Free PMC article.
1,547 results