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Page 1
The Italian National Centre for Rare Diseases: where research and public health translate into action.
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s591-605. doi: 10.2450/2014.0040-14s.
Blood Transfus. 2014.
PMID: 24922300
Free PMC article.
Review.
No abstract available.
Development of the WHOQOL disabilities module.
Power MJ, Green AM; WHOQOL-Dis Group.
Power MJ, et al.
Qual Life Res. 2010 May;19(4):571-84. doi: 10.1007/s11136-010-9616-6. Epub 2010 Mar 9.
Qual Life Res. 2010.
PMID: 20217246
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EUROPLAN: a project to support the development of national plans on rare diseases in Europe.
Taruscio D, Gentile AE, De Santis M, Ferrelli RM, Posada de la Paz M, Hens M, Huizer J, Fregonese L, Stefanov R, Bottarelli V, Weinman A, Le Cam Y, Gavhed D, Mincarone P, Bushby K, Frazzica RG, Donati C, Vittozzi L, Jessop E.
Taruscio D, et al. Among authors: frazzica rg.
Public Health Genomics. 2013;16(6):278-87. doi: 10.1159/000355932. Epub 2014 Feb 3.
Public Health Genomics. 2013.
PMID: 24503588
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The Quality of Care and Support (QOCS) for people with disability scale: development and psychometric properties.
Lucas-Carrasco R, Eser E, Hao Y, McPherson KM, Green A, Kullmann L; WHOQOL-DIS Group.
Lucas-Carrasco R, et al.
Res Dev Disabil. 2011 May-Jun;32(3):1212-25. doi: 10.1016/j.ridd.2010.12.030. Epub 2011 Jan 31.
Res Dev Disabil. 2011.
PMID: 21277738
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The Attitudes to Disability Scale (ADS): development and psychometric properties.
Power MJ, Green AM; WHOQOL-DIS Group.
Power MJ, et al.
J Intellect Disabil Res. 2010 Sep;54(9):860-74. doi: 10.1111/j.1365-2788.2010.01317.x.
J Intellect Disabil Res. 2010.
PMID: 20712699
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Centres of Expertise and European Reference Networks: key issues in the field of rare diseases. The EUCERD Recommendations.
Taruscio D, Gentile AE, Evangelista T, Frazzica RG, Bushby K, Montserrat AM.
Taruscio D, et al. Among authors: frazzica rg.
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s621-5. doi: 10.2450/2014.0026-14s.
Blood Transfus. 2014.
PMID: 24922304
Free PMC article.
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Perceptions of persons with Parkinson's disease, family and professionals on quality of life: an international focus group study.
Den Oudsten BL, Lucas-Carrasco R, Green AM; Whoqol-Dis Group.
Den Oudsten BL, et al.
Disabil Rehabil. 2011;33(25-26):2490-508. doi: 10.3109/09638288.2011.575527. Epub 2011 May 6.
Disabil Rehabil. 2011.
PMID: 21548821
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