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The Diagnostic Pathway Experiences of People Living with Rare Dementia and Their Family Caregivers: A Cross-Sectional Mixed Methods Study Using Qualitative and Economic Analyses.
Davies-Abbott I, Anthony BF, Jackson K, Windle G, Edwards RT; Rare Dementia Support (RDS) Research Team. Davies-Abbott I, et al. Int J Environ Res Public Health. 2024 Feb 16;21(2):231. doi: 10.3390/ijerph21020231. Int J Environ Res Public Health. 2024. PMID: 38397720 Free PMC article.
"Better Living with Non-memory-led Dementia": protocol for a feasibility randomised controlled trial of a web-based caregiver educational programme.
Suárez-González A, John A, Brotherhood E, Camic PM, McKee-Jackson R, Melville M, Sullivan MP, Tudor-Edwards R, Windle G, Crutch S, Hoare Z, Stott J; Rare Dementia Support Impact team. Suárez-González A, et al. Pilot Feasibility Stud. 2023 Oct 11;9(1):172. doi: 10.1186/s40814-023-01403-1. Pilot Feasibility Stud. 2023. PMID: 37821924 Free PMC article.
Protocol for the Rare Dementia Support Impact study: RDS Impact.
Brotherhood EV, Stott J, Windle G, Barker S, Culley S, Harding E, Camic PM, Caufield M, Ezeofor V, Hoare Z, McKee-Jackson R, Roberts J, Sharp R, Suarez-Gonzalez A, Sullivan MP, Tudor Edwards R, Walton J, Waddington C, Winrow E, Crutch SJ. Brotherhood EV, et al. Int J Geriatr Psychiatry. 2020 Aug;35(8):833-841. doi: 10.1002/gps.5253. Epub 2020 Feb 17. Int J Geriatr Psychiatry. 2020. PMID: 31876030 Clinical Trial.