Bukini D - Search Results

1

The Sickle Cell Disease Ontology: Enabling Collaborative Research and Co-Designing of New Planetary Health Applications.

Nembaware V, Mazandu GK, Hotchkiss J, Safari Serufuri JM, Kent J, Kengne AP, Anie K, Munung NS, Bukini D, Bitoungui VJN, Munube D, Chirwa U, Chunda-Liyoka C, Jonathan A, Flor-Park MV, Esoh KK, Jonas M, Mnika K, Oosterwyk C, Masamu U, Morrice J, Uwineza A, Nguweneza A, Banda K, Nyanor I, Adjei DN, Siebu NE, Nkanyemka M, Kuona P, Tayo BO, Campbell A, Oron AP, Nnodu OE, Painstil V, Makani J, Mulder N, Wonkam A. Nembaware V, et al. Among authors: bukini d. OMICS. 2020 Oct;24(10):559-567. doi: 10.1089/omi.2020.0153. OMICS. 2020. PMID: 33021900 Free PMC article.

2

Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon, Tanzania, and Ghana.

Bukini D, deVries J, Treadwell M, Anie K, Dennis-Antwi J, Kamga KK, McCurdy S, Ohene-Frempong K, Makani J, Wonkam A. Bukini D, et al. AJOB Empir Bioeth. 2019 Jul-Sep;10(3):182-189. doi: 10.1080/23294515.2019.1645759. Epub 2019 Aug 5. AJOB Empir Bioeth. 2019. PMID: 31379268 Free PMC article.

3

Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations.

Munung NS, Nembaware V, de Vries J, Bukini D, Tluway F, Treadwell M, Sangeda RZ, Mazandu G, Jonas M, Paintsil V, Nnodu OE, Balandya E, Makani J, Wonkam A. Munung NS, et al. Among authors: bukini d. Front Genet. 2019 Oct 10;10:943. doi: 10.3389/fgene.2019.00943. eCollection 2019. Front Genet. 2019. PMID: 31649726 Free PMC article.

4

A qualitative study on aspects of consent for genomic research in communities with low literacy.

Bukini D, Mbekenga C, Nkya S, Purvis L, McCurdy S, Parker M, Makani J. Bukini D, et al. BMC Med Ethics. 2020 Jun 12;21(1):48. doi: 10.1186/s12910-020-00488-0. BMC Med Ethics. 2020. PMID: 32532327 Free PMC article.

5

Influence of gender norms in relation to child's quality of care: follow-up of families of children with SCD identified through NBS in Tanzania.

Bukini D, Mbekenga C, Nkya S, Malasa L, McCurdy S, Manji K, Makani J, Parker M. Bukini D, et al. J Community Genet. 2021 Jan;12(1):143-154. doi: 10.1007/s12687-020-00482-4. Epub 2020 Aug 12. J Community Genet. 2021. PMID: 32789668 Free PMC article.

6

Perspectives on Building Sustainable Newborn Screening Programs for Sickle Cell Disease: Experience from Tanzania.

Bukini D, Nkya S, McCurdy S, Mbekenga C, Manji K, Parker M, Makani J. Bukini D, et al. Int J Neonatal Screen. 2021 Feb 26;7(1):12. doi: 10.3390/ijns7010012. Int J Neonatal Screen. 2021. PMID: 33652550 Free PMC article.

7

Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry.

Munung NS, Nembaware V, Osei-Tutu L, Treadwell M, Chide OE, Bukini D, Tutuba H; SickleInAfrica ELSI WG; Wonkam A. Munung NS, et al. Among authors: bukini d. BMC Med Ethics. 2022 Dec 8;23(1):130. doi: 10.1186/s12910-022-00843-3. BMC Med Ethics. 2022. PMID: 36482457 Free PMC article.

8

Caught between pity, explicit bias, and discrimination: a qualitative study on the impact of stigma on the quality of life of persons living with sickle cell disease in three African countries.

Munung NS, Treadwell M, Kamga KK, Dennis-Antwi J, Anie K, Bukini D, Makani J, Wonkam A. Munung NS, et al. Among authors: bukini d. Qual Life Res. 2024 Feb;33(2):423-432. doi: 10.1007/s11136-023-03533-8. Epub 2023 Oct 27. Qual Life Res. 2024. PMID: 37889387 Free PMC article.

9

The translational gap for gene therapies in low- and middle-income countries.

Doxzen KW, Adair JE, Fonseca Bazzo YM, Bukini D, Cornetta K, Dalal V, Guerino-Cunha RL, Hongeng S, Jotwani G, Kityo-Mutuluuza C, Lakshmanan K, Mahlangu J, Makani J, Mathews V, Ozelo MC, Rangarajan S, Scholefield J, Batista Silva Júnior J, McCune JM. Doxzen KW, et al. Among authors: bukini d. Sci Transl Med. 2024 May 8;16(746):eadn1902. doi: 10.1126/scitranslmed.adn1902. Epub 2024 May 8. Sci Transl Med. 2024. PMID: 38718130 Review.

10

Perceptions and preferences for genetic testing for sickle cell disease or trait: a qualitative study in Cameroon, Ghana and Tanzania.

Munung NS, Kamga KK, Treadwell MJ, Dennis-Antwi J, Anie KA, Bukini D, Makani J, Wonkam A. Munung NS, et al. Among authors: bukini d. Eur J Hum Genet. 2024 Feb 19. doi: 10.1038/s41431-024-01553-7. Online ahead of print. Eur J Hum Genet. 2024. PMID: 38374470

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