Feasibility and First Experiences from an Online Kidney School for Patients with Chronic Kidney Disease

Int J Environ Res Public Health. 2023 Jan 3;20(1):864. doi: 10.3390/ijerph20010864.

Abstract

Objectives: To examine patients' and relatives' experiences with participation in an online kidney school (OKS) and its influence on their choice of treatment modality; furthermore, to report on healthcare professionals' (HCPs) first experiences with OKS. Methods: A mixed-methods design with parallel data collection involving two questionnaires for participants, including patients and relatives and a focus group discussion (FGD) with HCPs. Results: The OKS was feasible, and overall, patients and relatives were satisfied. Participation in the OKS increased the percentage of those who felt ready to make a decision regarding treatment. One over-arching theme (evolvement of the online kidney school over time) and three sub-themes (concerns and perceived barriers, facilitators, and benefits and future possibilities) emerged from the FGD. Conclusions: The OKS proved feasible, was well-accepted, and increased participants' abilities to choose a preferred treatment modality. HCPs displayed initial concerns regarding the quality of the OKS and worried about the practicality of conducting the OKS. They experienced a feeling of something being lost. However, over time, HCPs developed strategies to tackle initial concerns and discovered that patients were more capable of participating than they had anticipated.

Keywords: chronic kidney disease; patient education; telehealth; telemedicine.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Feasibility Studies
  • Health Personnel*
  • Humans
  • Kidney
  • Qualitative Research
  • Renal Insufficiency, Chronic* / therapy
  • Surveys and Questionnaires

Grants and funding

This research was funded by the Knud and Edith Eriksen Memorial Fund, grant number 62786-2022.