Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomalies.
Claridge H, Tan J, Loane M, Garne E, Barisic I, Cavero-Carbonell C, Dias C, Gatt M, Jordan S, Khoshnood B, Kiuru-Kuhlefelt S, Klungsoyr K, Mokoroa Carollo O, Nelen V, Neville AJ, Pierini A, Randrianaivo H, Rissmann A, Tucker D, de Walle H, Wertelecki W, Morris JK.
Claridge H, et al.
BMJ Open. 2023 Jul 27;13(7):e071687. doi: 10.1136/bmjopen-2023-071687.
BMJ Open. 2023.
PMID: 37500278
Free PMC article.
Review.
However, across Europe, the permissions processes required to access data can be complex. This paper documents the processes required by the EUROlinkCAT study investigators to research the health and survival of children with congenital anomalies in Europe. . …
However, across Europe, the permissions processes required to access data can be complex. This paper documents the processes required …