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Page 1
The Burden of Spinal Muscular Atrophy on Informal Caregivers.
Aranda-Reneo I, Peña-Longobardo LM, Oliva-Moreno J, Litzkendorf S, Durand-Zaleski I, Tizzano EF, López-Bastida J. Aranda-Reneo I, et al. Among authors: litzkendorf s. Int J Environ Res Public Health. 2020 Dec 2;17(23):8989. doi: 10.3390/ijerph17238989. Int J Environ Res Public Health. 2020. PMID: 33276656 Free PMC article.
Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases.
Pauer F, Göbel J, Storf H, Litzkendorf S, Babac A, Frank M, Lührs V, Schauer F, Schmidtke J, Biehl L, Wagner TO, Ückert F, Graf von der Schulenburg JM, Hartz T. Pauer F, et al. Among authors: litzkendorf s. Interact J Med Res. 2016 Aug 25;5(3):e24. doi: 10.2196/ijmr.5822. Interact J Med Res. 2016. PMID: 27562540 Free PMC article.
Integrating patient perspectives in medical decision-making: a qualitative interview study examining potentials within the rare disease information exchange process in practice.
Babac A, von Friedrichs V, Litzkendorf S, Zeidler J, Damm K, Graf von der Schulenburg JM. Babac A, et al. Among authors: litzkendorf s. BMC Med Inform Decis Mak. 2019 Sep 18;19(1):188. doi: 10.1186/s12911-019-0911-z. BMC Med Inform Decis Mak. 2019. PMID: 31533712 Free PMC article.
Telephone health services in the field of rare diseases: a qualitative interview study examining the needs of patients, relatives, and health care professionals in Germany.
Babac A, Frank M, Pauer F, Litzkendorf S, Rosenfeldt D, Lührs V, Biehl L, Hartz T, Storf H, Schauer F, Wagner TOF, Graf von der Schulenburg JM. Babac A, et al. Among authors: litzkendorf s. BMC Health Serv Res. 2018 Feb 9;18(1):99. doi: 10.1186/s12913-018-2872-9. BMC Health Serv Res. 2018. PMID: 29426339 Free PMC article.
13 results