An Exploration of Family Caregiver Experiences of Burden and Coping While Caring for People with Mental Disorders in Saudi Arabia-A Qualitative Study

Int J Environ Res Public Health. 2020 Sep 2;17(17):6405. doi: 10.3390/ijerph17176405.

Abstract

Family caregivers of people with mental disorders face a number of burdens and stressors, such as associative stigma and burnout. These burdens are often a result of their caring role coupled with insufficient support or ineffective coping strategies, which can affect their quality of life and biopsychosocial integrity that, in turn, may affect the care they provide. This study aimed to explore the experiences of family caregivers of people with mental disorders, through examining the burdens that they face and the coping strategies that they use. Using a descriptive qualitative approach, 13 semi-structured interviews were conducted with members of the Saudi public, recruited through popular social media platforms and analyzed using thematic analysis. Five main themes were constructed from the data: Type of care, Challenges, Coping and support, Perceptions of public awareness, and Messages to others. The findings emphasize the different types of burdens that caregivers experience, and their needs that require a range of responses such as educational training on effective coping strategies, and psychological support in the form of counseling or group therapy. This study highlights the voice of caregivers and their message to the public, in order to correct the misconceptions surrounding mental disorders and those associated with them.

Keywords: caregiver burden; caregivers; coping; mental disorder.

MeSH terms

  • Adaptation, Psychological
  • Adult
  • Aged
  • Caregiver Burden*
  • Caregivers* / psychology
  • Family
  • Female
  • Humans
  • Male
  • Mental Disorders* / nursing
  • Middle Aged
  • Qualitative Research
  • Quality of Life
  • Saudi Arabia
  • Social Support
  • Young Adult