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Page 1
Rare Diseases: Needs and Impact for Patients and Families: A Cross-Sectional Study in the Valencian Region, Spain.
Gimenez-Lozano C, Páramo-Rodríguez L, Cavero-Carbonell C, Corpas-Burgos F, López-Maside A, Guardiola-Vilarroig S, Zurriaga O. Gimenez-Lozano C, et al. Among authors: paramo rodriguez l. Int J Environ Res Public Health. 2022 Aug 19;19(16):10366. doi: 10.3390/ijerph191610366. Int J Environ Res Public Health. 2022. PMID: 36012000 Free PMC article.
Oesophageal Atresia: Prevalence in the Valencian Region (Spain) and Associated Anomalies.
Agurto-Ramírez A, García-Villodre L, Ruiz-Palacio A, Arribas-Díaz B, Barrachina-Bonet L, Páramo-Rodríguez L, Zurriaga Ó, Cavero-Carbonell C. Agurto-Ramírez A, et al. Among authors: paramo rodriguez l. Int J Environ Res Public Health. 2023 Feb 24;20(5):4042. doi: 10.3390/ijerph20054042. Int J Environ Res Public Health. 2023. PMID: 36901053 Free PMC article.
[Diagnostic delay in rare diseases: between fear and resilience].
Páramo-Rodríguez L, Cavero-Carbonell C, Guardiola-Vilarroig S, López-Maside A, González Sanjuán ME, Zurriaga Ó. Páramo-Rodríguez L, et al. Gac Sanit. 2022 Dec 19;37:102272. doi: 10.1016/j.gaceta.2022.102272. eCollection 2023. Gac Sanit. 2022. PMID: 36542890 Free article. Spanish.
[Wilson's disease in Spain: validation of sources of information used by the Rare Diseases Registries].
Moreno-Marro S, Barrachina-Bonet L, Páramo-Rodríguez L, Alonso-Ferreira V, Guardiola-Vilarroig S, Vicente E, García-López M, Palomar-Rodríguez J, Zoni AC, Zurriaga Ó, Cavero-Carbonell C; Grupo de trabajo Wilson-RAER. Moreno-Marro S, et al. Among authors: paramo rodriguez l. Gac Sanit. 2021 Nov-Dec;35(6):551-558. doi: 10.1016/j.gaceta.2020.07.011. Epub 2020 Oct 1. Gac Sanit. 2021. PMID: 33010964 Free article. Spanish.
Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study.
Sinclair M, McCullough JEM, Elliott D, Braz P, Cavero-Carbonell C, Dornan L, Jamry-Dziurla A, João Santos A, Latos-Bieleńska A, Machado A, Páramo-Rodríguez L. Sinclair M, et al. Among authors: paramo rodriguez l. JMIR Pediatr Parent. 2021 Nov 15;4(4):e18483. doi: 10.2196/18483. JMIR Pediatr Parent. 2021. PMID: 34779778 Free PMC article.
[Drugs use in pregnancy in the Valencia Region and the risk of congenital anomalies].
Cavero-Carbonell C, Gimeno-Martos S, Páramo-Rodríguez L, Rabanaque-Hernández MJ, Martos-Jiménez C, Zurriaga Ó. Cavero-Carbonell C, et al. Among authors: paramo rodriguez l. An Pediatr (Barc). 2017 Sep;87(3):135-142. doi: 10.1016/j.anpedi.2016.08.003. Epub 2016 Oct 13. An Pediatr (Barc). 2017. PMID: 27743964 Free article. Spanish.
Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study.
Sinclair M, McCullough JE, Elliott D, Latos-Bielenska A, Braz P, Cavero-Carbonell C, Jamry-Dziurla A, João Santos A, Páramo-Rodríguez L. Sinclair M, et al. Among authors: paramo rodriguez l. J Med Internet Res. 2019 Nov 25;21(11):e15847. doi: 10.2196/15847. J Med Internet Res. 2019. PMID: 31763986 Free PMC article.