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Data Quality in Rare Diseases Registries.
Kodra Y, Posada de la Paz M, Coi A, Santoro M, Bianchi F, Ahmed F, Rubinstein YR, Weinbach J, Taruscio D. Kodra Y, et al. Among authors: weinbach j. Adv Exp Med Biol. 2017;1031:149-164. doi: 10.1007/978-3-319-67144-4_8. Adv Exp Med Biol. 2017. PMID: 29214570 Review.
Recommendations for Improving the Quality of Rare Disease Registries.
Kodra Y, Weinbach J, Posada-de-la-Paz M, Coi A, Lemonnier SL, van Enckevort D, Roos M, Jacobsen A, Cornet R, Ahmed SF, Bros-Facer V, Popa V, Van Meel M, Renault D, von Gizycki R, Santoro M, Landais P, Torreri P, Carta C, Mascalzoni D, Gainotti S, Lopez E, Ambrosini A, Müller H, Reis R, Bianchi F, Rubinstein YR, Lochmüller H, Taruscio D. Kodra Y, et al. Among authors: weinbach j. Int J Environ Res Public Health. 2018 Aug 3;15(8):1644. doi: 10.3390/ijerph15081644. Int J Environ Res Public Health. 2018. PMID: 30081484 Free PMC article.
Defining the scope of the European Antimicrobial Resistance Surveillance network in Veterinary medicine (EARS-Vet): a bottom-up and One Health approach.
Mader R; EU-JAMRAI; Bourély C, Amat JP, Broens EM, Busani L, Callens B, Crespo-Robledo P, Damborg P, Filippitzi ME, Fitzgerald W, Grönthal T, Haenni M, Heuvelink A, van Hout J, Kaspar H, Muñoz Madero C, Norström M, Pedersen K, Pokludova L, Dal Pozzo F, Slowey R, Urdahl AM, Vatopoulos A, Zafeiridis C, Madec JY. Mader R, et al. J Antimicrob Chemother. 2022 Feb 23;77(3):816-826. doi: 10.1093/jac/dkab462. J Antimicrob Chemother. 2022. PMID: 35022739 Free PMC article.
RaDiCo, the French national research program on rare disease cohorts.
Amselem S, Gueguen S, Weinbach J, Clement A, Landais P; RaDiCo Program. Amselem S, et al. Among authors: weinbach j. Orphanet J Rare Dis. 2021 Oct 29;16(1):454. doi: 10.1186/s13023-021-02089-5. Orphanet J Rare Dis. 2021. PMID: 34715889 Free PMC article.