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The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children's Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises.
Campbell A, Rizio AA, McCausland KL, Iorga S, Yen GP, Paulose J, Lee S. Campbell A, et al. Among authors: yen gp. Patient Relat Outcome Meas. 2023 Nov 28;14:369-381. doi: 10.2147/PROM.S419607. eCollection 2023. Patient Relat Outcome Meas. 2023. PMID: 38046665 Free PMC article.