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Carer reported experiences: Supporting someone with a rare disease.
Health Soc Care Community. 2022 May;30(3):1097-1108. doi: 10.1111/hsc.13336. Epub 2021 May 6.
Health Soc Care Community. 2022.
PMID: 33955634
A Formative Study of the Implementation of Whole Genome Sequencing in Northern Ireland.
Kerr K, McKenna C, Heggarty S, Bailie C, McMullan J, Crowe A, Kilner J, Donnelly M, Boyle S, Rea G, Flanagan C, McKee S, McKnight AJ.
Kerr K, et al. Among authors: crowe a.
Genes (Basel). 2022 Jun 21;13(7):1104. doi: 10.3390/genes13071104.
Genes (Basel). 2022.
PMID: 35885887
Free PMC article.
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Evaluating the impact of COVID-19 on rare disease support groups.
McMullan J, Crowe AL, Bailie C, McKnight AJ.
McMullan J, et al. Among authors: crowe al.
BMC Res Notes. 2021 May 6;14(1):168. doi: 10.1186/s13104-021-05579-8.
BMC Res Notes. 2021.
PMID: 33957984
Free PMC article.
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Communication Needs for Individuals With Rare Diseases Within and Around the Healthcare System of Northern Ireland.
Crowe AL, McKnight AJ, McAneney H.
Crowe AL, et al.
Front Public Health. 2019 Aug 21;7:236. doi: 10.3389/fpubh.2019.00236. eCollection 2019.
Front Public Health. 2019.
PMID: 31497589
Free PMC article.
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A quick reference guide for rare disease: supporting rare disease management in general practice.
Crowe A, McAneney H, Morrison PJ, Cupples ME, McKnight AJ.
Crowe A, et al.
Br J Gen Pract. 2020 Apr 30;70(694):260-261. doi: 10.3399/bjgp20X709853. Print 2020 May.
Br J Gen Pract. 2020.
PMID: 32354833
Free PMC article.
No abstract available.
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Improvements needed to support people living and working with a rare disease in Northern Ireland: current rare disease support perceived as inadequate.
McMullan J, Crowe AL, Bailie C, Moore K, McMullan LS, Shamandi N, McAneney H, McKnight AJ.
McMullan J, et al. Among authors: crowe al.
Orphanet J Rare Dis. 2020 Nov 9;15(1):315. doi: 10.1186/s13023-020-01559-6.
Orphanet J Rare Dis. 2020.
PMID: 33168042
Free PMC article.
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Stakeholder Perceptions of Complementary and Integrative Medicines from People Living with Rare Diseases in Northern Ireland: A Mixed Methods Study.
Crowe AL, Kerr K, McAneney H, McMullan J, Duffy G, McKnight AJ.
Crowe AL, et al.
Complement Med Res. 2024;31(2):107-115. doi: 10.1159/000535480. Epub 2023 Dec 5.
Complement Med Res. 2024.
PMID: 38052188
Free PMC article.
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