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The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia.
Skinner MW, Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, Noone D, O'Mahony B, Page D, Stonebraker JS, Iorio A. Skinner MW, et al. Among authors: frick n. Pilot Feasibility Stud. 2018 Feb 27;4:58. doi: 10.1186/s40814-018-0253-0. eCollection 2018. Pilot Feasibility Stud. 2018. PMID: 29497561 Free PMC article.
Non-severe haemophilia: Is it benign? - Insights from the PROBE study.
Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol MB, Germini F, O'Mahony B, Page D, Stonebraker JS, Skinner MW, Iorio A. Chai-Adisaksopha C, et al. Among authors: frick n. Haemophilia. 2021 Jan;27 Suppl 1:17-24. doi: 10.1111/hae.14105. Epub 2020 Sep 1. Haemophilia. 2021. PMID: 32870546
Evaluation of the sexual health in people living with hemophilia.
Germini F, Chai-Adisaksopha C, Pete D, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker JS, Thabane L, Crowther MA, Skinner MW, Iorio A. Germini F, et al. Among authors: frick n. Haemophilia. 2021 Nov;27(6):993-1001. doi: 10.1111/hae.14410. Epub 2021 Sep 19. Haemophilia. 2021. PMID: 34538001
User-Centered Development and Testing of the Online Patient-Reported Outcomes, Burdens, and Experiences (PROBE) Survey and the myPROBE App and Integration With the Canadian Bleeding Disorder Registry: Mixed Methods Study.
Germini F, Borg Debono V, Page D, Zuk V, Kucher A, Cotoi C, Hobson N, Sevestre M, Skinner MW, Iorio A; PROBE Investigators. Germini F, et al. JMIR Hum Factors. 2022 Mar 2;9(1):e30797. doi: 10.2196/30797. JMIR Hum Factors. 2022. PMID: 35234648 Free PMC article.
Integrated Hemophilia Patient Care via a National Network of Care Centers in the United States: A Model for Rare Coagulation Disorders.
Valentino LA, Baker JR, Butler R, Escobar M, Frick N, Karp S, Koulianos K, Lattimore S, Nugent D, Pugliese JN, Recht M, Reding MT, Rice M, Thibodeaux CB, Skinner M. Valentino LA, et al. Among authors: frick n. J Blood Med. 2021 Oct 21;12:897-911. doi: 10.2147/JBM.S325031. eCollection 2021. J Blood Med. 2021. PMID: 34707421 Free PMC article.
50 results