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Activities of Clinical Expertise and Research in a Rare Disease Referral Centre: A Place for Telemedicine beyond the COVID-19 Pandemic?
Ducrocq Q, Guédon-Moreau L, Launay D, Terriou L, Morell-Dubois S, Maillard H, Lefèvre G, Sobanski V, Lambert M, Yelnik C, Farhat MM, Garcia Fernandez MJ, Hachulla E, Sanges S. Ducrocq Q, et al. Among authors: hachulla e. Healthcare (Basel). 2023 Aug 31;11(17):2447. doi: 10.3390/healthcare11172447. Healthcare (Basel). 2023. PMID: 37685481 Free PMC article.
Risk factors for death and the 3-year survival of patients with systemic sclerosis: the French ItinérAIR-Sclérodermie study.
Hachulla E, Carpentier P, Gressin V, Diot E, Allanore Y, Sibilia J, Launay D, Mouthon L, Jego P, Cabane J, de Groote P, Chabrol A, Lazareth I, Guillevin L, Clerson P, Humbert M; ItinérAIR-Sclérodermie Study Investigators. Hachulla E, et al. Rheumatology (Oxford). 2009 Mar;48(3):304-8. doi: 10.1093/rheumatology/ken488. Epub 2009 Jan 27. Rheumatology (Oxford). 2009. PMID: 19174571 Free PMC article.
Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial.
Kwakkenbos L, Carrier ME, Welling J, Levis B, Levis AW, Sauve M, Turner KA, Tao L, Aguila K, Carboni-Jiménez A, Cañedo-Ayala M, Harb S, van den Ende C, Hudson M, van Breda W, Nguyen C, Boutron I, Rannou F, Thombs BD, Mouthon L; SPIN Investigators. Kwakkenbos L, et al. Trials. 2022 Dec 12;23(1):994. doi: 10.1186/s13063-022-06923-4. Trials. 2022. PMID: 36510233 Free PMC article. Clinical Trial.
Self-reported Impact of the Early 2020 COVID-19 Crisis on the Healthcare Pathway During and After Lockdown in Patients With Chronic Immune-Mediated Inflammatory Diseases: A Practical Survey.
Nasseh J, Podevin C, Ternynck C, Zephir H, Letarouilly JG, Flipo RM, Nachury M, Chenivesse C, Hachulla E, Launay D, Staumont-Salle D, Dezoteux F. Nasseh J, et al. Among authors: hachulla e. J Patient Exp. 2022 Dec 8;9:23743735221143736. doi: 10.1177/23743735221143736. eCollection 2022. J Patient Exp. 2022. PMID: 36518727 Free PMC article.
Evaluation of Measurement Properties and Differential Item Functioning in the English and French Versions of the University of California, Los Angeles, Loneliness Scale-6: A Scleroderma Patient-Centered Intervention Network (SPIN) Study.
S Rapoport C, Choi AK, Kwakkenbos L, Carrier ME, Henry RS, Mouthon L, Roesch SC, Thombs BD, Malcarne VL; SPIN COVID-19 Patient Advisory Team; SPIN Investigators. S Rapoport C, et al. Arthritis Care Res (Hoboken). 2023 Oct;75(10):2158-2165. doi: 10.1002/acr.25115. Epub 2023 Apr 26. Arthritis Care Res (Hoboken). 2023. PMID: 36938696
Mental health symptoms in scleroderma during COVID-19: a Scleroderma Patient-centred Intervention Network (SPIN) cohort longitudinal study.
Henry RS, Kwakkenbos L, Carrier ME, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD; SPIN COVID-19 Patient Advisory Team for the SPIN Investigators. Henry RS, et al. Clin Exp Rheumatol. 2023 Aug;41(8):1639-1643. doi: 10.55563/clinexprheumatol/cca0xv. Epub 2023 Apr 19. Clin Exp Rheumatol. 2023. PMID: 37083160 Free article.
Six medico-psycho-social dimensions of a pedagogical model used to define clusters of patients with Sjögren's syndrome and intentionality to participate in a patient education programme.
Antoine P, Morell-Dubois S, Maillard H, Wojtasik G, Sanges S, Launay D, Sobanski V, Saraux A, Devauchelle V, Hachulla E, Farhat MM. Antoine P, et al. Among authors: hachulla e. Clin Exp Rheumatol. 2023 Dec;41(12):2379-2388. doi: 10.55563/clinexprheumatol/f5r0oe. Epub 2023 Jun 30. Clin Exp Rheumatol. 2023. PMID: 37389544 Free article.
936 results