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Qualitative Study of the Patient Experience with Venglustat for Gaucher Disease Type 3 in a Phase 2 Open-Label, Multicenter, Multinational Study (LEAP).
Adv Ther. 2024 May 27. doi: 10.1007/s12325-024-02881-2. Online ahead of print.
Adv Ther. 2024.
PMID: 38802634
Psychometric evaluation of a patient-reported outcomes instrument for congenital thrombotic thrombocytopenic purpura.
Oladapo A, Ito D, Rodriguez AM, Philpott S, Krupnick R, Allen V, Hibbard C, Scully M, Ewenstein B.
Oladapo A, et al. Among authors: krupnick r.
J Patient Rep Outcomes. 2023 Jul 14;7(1):68. doi: 10.1186/s41687-023-00592-w.
J Patient Rep Outcomes. 2023.
PMID: 37450201
Free PMC article.
Review.
Item in Clipboard
Qualitative interviews to improve patient-reported outcome measures in late-onset Pompe disease: the patient perspective.
Hamed A, An Haack K, Gwaltney C, Baranowski E, Stewart A, Krupnick R, Tyler M, Sparks S, Paty J.
Hamed A, et al. Among authors: krupnick r.
Orphanet J Rare Dis. 2021 Oct 12;16(1):428. doi: 10.1186/s13023-021-02067-x.
Orphanet J Rare Dis. 2021.
PMID: 34641935
Free PMC article.
Item in Clipboard
Patient and caregiver perspectives on burden of disease manifestations in late-onset Tay-Sachs and Sandhoff diseases.
Lyn N, Pulikottil-Jacob R, Rochmann C, Krupnick R, Gwaltney C, Stephens N, Kissell J, Cox GF, Fischer T, Hamed A.
Lyn N, et al. Among authors: krupnick r.
Orphanet J Rare Dis. 2020 Apr 15;15(1):92. doi: 10.1186/s13023-020-01354-3.
Orphanet J Rare Dis. 2020.
PMID: 32295606
Free PMC article.
Item in Clipboard
The Symptoms and Impact of Recurrent Focal Segmental Glomerulosclerosis in Kidney Transplant Recipients: A Conceptual Model of the Patient Experience.
English M, Hawryluk E, Krupnick R, Kumar MSA, Schwartz J.
English M, et al. Among authors: krupnick r.
Adv Ther. 2019 Dec;36(12):3390-3408. doi: 10.1007/s12325-019-01110-5. Epub 2019 Oct 14.
Adv Ther. 2019.
PMID: 31612357
Free PMC article.
Review.
Item in Clipboard
Patient Experience with Congenital (Hereditary) Thrombotic Thrombocytopenic Purpura: A Conceptual Framework of Symptoms and Impacts.
Oladapo AO, Ito D, Hibbard C, Bean SE, Krupnick RN, Ewenstein BM.
Oladapo AO, et al. Among authors: krupnick rn.
Patient. 2019 Oct;12(5):503-512. doi: 10.1007/s40271-019-00365-y.
Patient. 2019.
PMID: 31359341
Free PMC article.
Item in Clipboard
Symptoms and Impacts in Non-Metastatic Castration-Resistant Prostate Cancer: Qualitative Study Findings.
Tomaszewski EL, Moise P, Krupnick RN, Downing J, Meyer M, Naidoo S, Holmstrom S.
Tomaszewski EL, et al. Among authors: krupnick rn.
Patient. 2017 Oct;10(5):567-578. doi: 10.1007/s40271-017-0227-y.
Patient. 2017.
PMID: 28285412
Free PMC article.
Item in Clipboard
The Patient Perspective on Living with Acute Myeloid Leukemia.
Tomaszewski EL, Fickley CE, Maddux L, Krupnick R, Bahceci E, Paty J, van Nooten F.
Tomaszewski EL, et al. Among authors: krupnick r.
Oncol Ther. 2016;4(2):225-238. doi: 10.1007/s40487-016-0029-8. Epub 2016 Sep 2.
Oncol Ther. 2016.
PMID: 28261652
Free PMC article.
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