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A Medical Report Feature for OSSE Rare Disease Registries.
Schueler K, Zieschank A, Göbel J, Vasseur J, Schaaf J, Hohenfellner K, Wildenhain S, Storf H. Schueler K, et al. Among authors: gobel j. Stud Health Technol Inform. 2021 May 27;281:1085-1086. doi: 10.3233/SHTI210356. Stud Health Technol Inform. 2021. PMID: 34042849
Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases.
Pauer F, Göbel J, Storf H, Litzkendorf S, Babac A, Frank M, Lührs V, Schauer F, Schmidtke J, Biehl L, Wagner TO, Ückert F, Graf von der Schulenburg JM, Hartz T. Pauer F, et al. Among authors: gobel j. Interact J Med Res. 2016 Aug 25;5(3):e24. doi: 10.2196/ijmr.5822. Interact J Med Res. 2016. PMID: 27562540 Free PMC article.
[Central information portal on rare diseases : Implementation of quality- and needs-oriented information management].
Litzkendorf S, Pauer F, Zeidler J, Göbel J, Storf H, Graf von der Schulenburg JM. Litzkendorf S, et al. Among authors: gobel j. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2017 May;60(5):494-502. doi: 10.1007/s00103-017-2527-8. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2017. PMID: 28271149 German.
Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study.
Litzkendorf S, Hartz T, Göbel J, Storf H, Pauer F, Babac A, Lührs V, Bruckner-Tuderman L, Schauer F, Schmidtke J, Biehl L, Wagner T, Graf von der Schulenburg JM, Frank M. Litzkendorf S, et al. Among authors: gobel j. JMIR Res Protoc. 2018 May 11;7(5):e112. doi: 10.2196/resprot.7425. JMIR Res Protoc. 2018. PMID: 29752252 Free PMC article.
Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study.
Litzkendorf S, Hartz T, Göbel J, Storf H, Pauer F, Babac A, Lührs V, Bruckner-Tuderman L, Schauer F, Schmidtke J, Biehl L, Wagner T, Graf von der Schulenburg JM, Frank M. Litzkendorf S, et al. Among authors: gobel j. JMIR Res Protoc. 2018 Sep 19;7(9):e11248. doi: 10.2196/11248. JMIR Res Protoc. 2018. PMID: 30240351 Free PMC article.
Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry.
Scheible R, Kadioglu D, Ehl S, Blum M, Boeker M, Folz M, Grimbacher B, Göbel J, Klein C, Nieters A, Rusch S, Kindle G, Storf H. Scheible R, et al. Among authors: gobel j. JMIR Med Inform. 2020 Oct 7;8(10):e17420. doi: 10.2196/17420. JMIR Med Inform. 2020. PMID: 33026355 Free PMC article.
Development of an Interactive Dashboard for OSSE Rare Disease Registries.
Vasseur J, Zieschank A, Göbel J, Schaaf J, Dahmer-Heath M, König J, Kadioglu D, Storf H. Vasseur J, et al. Among authors: gobel j. Stud Health Technol Inform. 2022 May 16;293:187-188. doi: 10.3233/SHTI220367. Stud Health Technol Inform. 2022. PMID: 35592980
53 results