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Analysis of the functional capacity outcome measures for myotonic dystrophy.
Jimenez-Moreno AC, Nikolenko N, Kierkegaard M, Blain AP, Newman J, Massey C, Moat D, Sodhi J, Atalaia A, Gorman GS, Turner C, Lochmüller H. Jimenez-Moreno AC, et al. Ann Clin Transl Neurol. 2019 Aug;6(8):1487-1497. doi: 10.1002/acn3.50845. Epub 2019 Jul 22. Ann Clin Transl Neurol. 2019. PMID: 31402614 Free PMC article.
Patient Centricity in Patient Preference Studies: The Patient Perspective.
van Overbeeke E, Vanbinst I, Jimenez-Moreno AC, Huys I. van Overbeeke E, et al. Among authors: jimenez moreno ac. Front Med (Lausanne). 2020 Mar 20;7:93. doi: 10.3389/fmed.2020.00093. eCollection 2020. Front Med (Lausanne). 2020. PMID: 32266277 Free PMC article.
Correction to: Patient Preferences in Rare Diseases: A Qualitative Study in Neuromuscular Disorders to Inform a Quantitative Preference Study.
Jimenez-Moreno AC, van Overbeeke E, Pinto CA, Smith I, Sharpe J, Ormrod J, Whichello C, de Bekker-Grob EW, Bullok K, Levitan B, Huys I, de Wit GA, Gorman G. Jimenez-Moreno AC, et al. Patient. 2021 Sep;14(5):693. doi: 10.1007/s40271-021-00523-1. Patient. 2021. PMID: 33973155 Free PMC article. No abstract available.
A study protocol for quantifying patient preferences in neuromuscular disorders: a case study of the IMI PREFER Project.
Jimenez-Moreno AC, Pinto CA, Levitan B, Whichello C, Dyer C, Van Overbeeke E, de Bekker-Grob E, Smith I, Huys I, Viberg Johansson J, Adcock K, Bullock K, Soekhai V, Yuan Z, Lochmuller H, de Wit A, Gorman GS. Jimenez-Moreno AC, et al. Wellcome Open Res. 2020 Oct 23;5:253. doi: 10.12688/wellcomeopenres.16116.1. eCollection 2020. Wellcome Open Res. 2020. PMID: 34395923 Free PMC article.
Research Priorities to Increase Confidence in and Acceptance of Health Preference Research: What Questions Should be Prioritized Now?
DiSantostefano RL, Smith IP, Falahee M, Jiménez-Moreno AC, Oliveri S, Veldwijk J, de Wit GA, Janssen EM, Berlin C, Groothuis-Oudshoorn CGM. DiSantostefano RL, et al. Among authors: jimenez moreno ac. Patient. 2024 Mar;17(2):179-190. doi: 10.1007/s40271-023-00650-x. Epub 2023 Dec 16. Patient. 2024. PMID: 38103109 Free PMC article.
Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.
Wood L, Bassez G, Bleyenheuft C, Campbell C, Cossette L, Jimenez-Moreno AC, Dai Y, Dawkins H, Manera JAD, Dogan C, El Sherif R, Fossati B, Graham C, Hilbert J, Kastreva K, Kimura E, Korngut L, Kostera-Pruszczyk A, Lindberg C, Lindvall B, Luebbe E, Lusakowska A, Mazanec R, Meola G, Orlando L, Takahashi MP, Peric S, Puymirat J, Rakocevic-Stojanovic V, Rodrigues M, Roxburgh R, Schoser B, Segovia S, Shatillo A, Thiele S, Tournev I, van Engelen B, Vohanka S, Lochmüller H. Wood L, et al. Orphanet J Rare Dis. 2018 Sep 5;13(1):155. doi: 10.1186/s13023-018-0889-0. Orphanet J Rare Dis. 2018. PMID: 30185236 Free PMC article.
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