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Collaboration between patient organisations and a clinical research sponsor in a rare disease condition: learnings from a community advisory board and best practice for future collaborations.
Roennow A, Sauvé M, Welling J, Riggs RJ, Kennedy AT, Galetti I, Brown E, Leite C, Gonzalez A, Portales Guiraud AP, Houÿez F, Camp R, Gilbert A, Gahlemann M, Moros L, Luna Flores JL, Schmidt F, Sauter W, Finnern H. Roennow A, et al. Among authors: kennedy at. BMJ Open. 2020 Dec 16;10(12):e039473. doi: 10.1136/bmjopen-2020-039473. BMJ Open. 2020. PMID: 33328257 Free PMC article.
EUSTAR biobanking: recommendations for the collection, storage and distribution of biospecimens in scleroderma research.
Beyer C, Distler JH, Allanore Y, Aringer M, Avouac J, Czirják L, Cutolo M, Damjanov N, Del Galdo F, Fligelstone K, Guiducci S, Kowal-Bielecka O, van Laar JM, Martucci-Cerinic M, Müller-Ladner U, Riemekasten G, Tarner IH, Tyndall A, Kennedy AT, Valentini G, Vettori S, Walker UA, Denton C, Distler O; EUSTAR Biobanking Group. Beyer C, et al. Among authors: kennedy at. Ann Rheum Dis. 2011 Jul;70(7):1178-82. doi: 10.1136/ard.2010.142489. Epub 2011 Feb 1. Ann Rheum Dis. 2011. PMID: 21285118 Free article.
Decreasing Interstage Mortality After the Norwood Procedure: A 30-Year Experience.
Kaplinski M, Ittenbach RF, Hunt ML, Stephan D, Natarajan SS, Ravishankar C, Giglia TM, Rychik J, Rome JJ, Mahle M, Kennedy AT, Steven JM, Fuller SM, Nicolson SC, Spray TL, Gaynor JW, Mascio CE. Kaplinski M, et al. Among authors: kennedy at. J Am Heart Assoc. 2020 Oct 20;9(19):e016889. doi: 10.1161/JAHA.120.016889. Epub 2020 Sep 23. J Am Heart Assoc. 2020. PMID: 32964778 Free PMC article.
Complement in malaria immunity and vaccines.
Kurtovic L, Boyle MJ, Opi DH, Kennedy AT, Tham WH, Reiling L, Chan JA, Beeson JG. Kurtovic L, et al. Among authors: kennedy at. Immunol Rev. 2020 Jan;293(1):38-56. doi: 10.1111/imr.12802. Epub 2019 Sep 26. Immunol Rev. 2020. PMID: 31556468 Free PMC article. Review.
Thirty years and 1663 consecutive Norwood procedures: Has survival plateaued?
Mascio CE, Irons ML, Ittenbach RF, Gaynor JW, Fuller SM, Kaplinski M, Kennedy AT, Steven JM, Nicolson SC, Spray TL. Mascio CE, et al. Among authors: kennedy at. J Thorac Cardiovasc Surg. 2019 Jul;158(1):220-229. doi: 10.1016/j.jtcvs.2018.12.117. Epub 2019 Feb 28. J Thorac Cardiovasc Surg. 2019. PMID: 31248509 Free article.
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