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Features of Marfan syndrome not listed in the Ghent nosology - the dark side of the disease.
Expert Rev Cardiovasc Ther. 2019 Dec;17(12):883-915. doi: 10.1080/14779072.2019.1704625.
Expert Rev Cardiovasc Ther. 2019.
PMID: 31829751
Review.
Survival, causes of death, and cardiovascular events in patients with Marfan syndrome.
Vanem TT, Geiran OR, Krohg-Sørensen K, Røe C, Paus B, Rand-Hendriksen S.
Vanem TT, et al.
Mol Genet Genomic Med. 2018 Nov;6(6):1114-1123. doi: 10.1002/mgg3.489. Epub 2018 Nov 4.
Mol Genet Genomic Med. 2018.
PMID: 30393980
Free PMC article.
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Health-related quality of life in Marfan syndrome: a 10-year follow-up.
Vanem TT, Rand-Hendriksen S, Brunborg C, Geiran OR, Røe C.
Vanem TT, et al.
Health Qual Life Outcomes. 2020 Dec 1;18(1):376. doi: 10.1186/s12955-020-01633-4.
Health Qual Life Outcomes. 2020.
PMID: 33256748
Free PMC article.
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Marfan syndrome: Evolving organ manifestations-A 10-year follow-up study.
Vanem TT, Böker T, Sandvik GF, Kirkhus E, Smith HJ, Andersen K, Drolsum L, Lundby R, Røe C, Krohg-Sørensen K, Geiran OR, Paus B, Rand-Hendriksen S.
Vanem TT, et al.
Am J Med Genet A. 2020 Feb;182(2):397-408. doi: 10.1002/ajmg.a.61441. Epub 2019 Dec 11.
Am J Med Genet A. 2020.
PMID: 31825148
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Ten-year reinvestigation of ocular manifestations in Marfan syndrome.
Sandvik GF, Vanem TT, Rand-Hendriksen S, Cholidis S, Saethre M, Drolsum L.
Sandvik GF, et al. Among authors: vanem tt.
Clin Exp Ophthalmol. 2019 Mar;47(2):212-218. doi: 10.1111/ceo.13408. Epub 2018 Nov 11.
Clin Exp Ophthalmol. 2019.
PMID: 30260057
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Dural ectasia in Marfan syndrome and other hereditary connective tissue disorders: a 10-year follow-up study.
Böker T, Vanem TT, Pripp AH, Rand-Hendriksen S, Paus B, Smith HJ, Lundby R.
Böker T, et al. Among authors: vanem tt.
Spine J. 2019 Aug;19(8):1412-1421. doi: 10.1016/j.spinee.2019.04.010. Epub 2019 Apr 15.
Spine J. 2019.
PMID: 30998996
Free article.
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