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Provincial Differences in the Diagnosis and Care of Amyotrophic Lateral Sclerosis.
Hodgkinson VL, Lounsberry J, Mirian A, Genge A, Benstead T, Briemberg H, Grant I, Hader W, Johnston WS, Kalra S, Linassi G, Massie R, Melanson M, O'Connell C, Schellenberg K, Shoesmith C, Taylor S, Worley S, Zinman L, Korngut L. Hodgkinson VL, et al. Can J Neurol Sci. 2018 Nov;45(6):652-659. doi: 10.1017/cjn.2018.311. Can J Neurol Sci. 2018. PMID: 30430962
Genetic testing for amyotrophic lateral sclerosis in Canada - an assessment of current practices.
Salmon K, Anoja N, Breiner A, Chum M, Dionne A, Dupré N, Fiander A, Fok D, Ghavanini A, Gosselin S, Izenberg A, Johnston W, Kalra S, Matte G, Melanson M, O'Connell C, Ritsma B, Schellenberg K, Shoesmith C, Tremblay S, Williams H, Genge A. Salmon K, et al. Amyotroph Lateral Scler Frontotemporal Degener. 2022 May;23(3-4):305-312. doi: 10.1080/21678421.2021.1980890. Epub 2021 Sep 27. Amyotroph Lateral Scler Frontotemporal Degener. 2022. PMID: 34569363
Establishing a Canadian registry of patients with amyotrophic lateral sclerosis.
Korngut L, Genge A, Johnston M, Benstead T, Bourque P, Briemberg H, Casey A, D'Amour M, Dupré N, Figlewicz D, Hader W, Johnston W, Kalra S, Melanson M, O'Connell C, Rouleau G, Shoesmith C, Wee J, Zinman L. Korngut L, et al. Can J Neurol Sci. 2013 Jan;40(1):29-35. doi: 10.1017/s0317167100012919. Can J Neurol Sci. 2013. PMID: 23250124
Refining items for a preference-based, amyotrophic lateral sclerosis specific, health-related quality of life scale.
Van Damme J, Kuspinar A, Johnston W, O'Connell C, Turnbull J, Chum M, Strachan P, Luth W, McCullum S, Peters N, MacDermid J, Dal Bello-Haas V. Van Damme J, et al. Amyotroph Lateral Scler Frontotemporal Degener. 2022 Nov;23(7-8):508-516. doi: 10.1080/21678421.2022.2029898. Epub 2022 Feb 11. Amyotroph Lateral Scler Frontotemporal Degener. 2022. PMID: 35147072
Do Generic Preference-Based Measures Accurately Capture Areas of Health-Related Quality of Life Important to Individuals with Amyotrophic Lateral Sclerosis: A Content Validation Study.
Peters N, Dal Bello-Haas V, Packham T, Chum M, O'Connell C, Johnston WS, MacDermid JC, Turnbull J, Van Damme J, Kuspinar A. Peters N, et al. Patient Relat Outcome Meas. 2021 Jun 25;12:191-203. doi: 10.2147/PROM.S313512. eCollection 2021. Patient Relat Outcome Meas. 2021. PMID: 34211304 Free PMC article.
663 results