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Physical activity improved by adherence to prophylaxis in an Italian population of children, adolescents and adults with severe haemophilia A: the SHAPE Study.
Zanon E, Tagliaferri A, Pasca S, Ettorre CP, Notarangelo LD, Biasioli C, Aru AB, Milan M, Linari S, Rocino A, Gagliano F, Di Minno G, Gamba G, Santoro RC, Schinco P, Marietta M, Seuser A, von Mackensen S. Zanon E, et al. Among authors: von mackensen s. Blood Transfus. 2020 Mar;18(2):152-158. doi: 10.2450/2019.0040-19. Epub 2019 Jun 5. Blood Transfus. 2020. PMID: 31184581 Free PMC article.
Health status and quality of life of elderly persons with severe hemophilia born before the advent of modern replacement therapy.
Siboni SM, Mannucci PM, Gringeri A, Franchini M, Tagliaferri A, Ferretti M, Tradati FC, Santagostino E, von Mackensen S; Italian Association of Haemophilia Centres (AICE). Siboni SM, et al. Among authors: von mackensen s. J Thromb Haemost. 2009 May;7(5):780-6. doi: 10.1111/j.1538-7836.2009.03318.x. Epub 2009 Feb 12. J Thromb Haemost. 2009. PMID: 19220727 Free article.
The impact of sport on children with haemophilia.
Khair K, Littley A, Will A, von Mackensen S. Khair K, et al. Among authors: von mackensen s. Haemophilia. 2012 Nov;18(6):898-905. doi: 10.1111/j.1365-2516.2012.02857.x. Epub 2012 May 28. Haemophilia. 2012. PMID: 22630612
The effect of emicizumab prophylaxis on health-related outcomes in persons with haemophilia A with inhibitors: HAVEN 1 Study.
Oldenburg J, Mahlangu JN, Bujan W, Trask P, Callaghan MU, Young G, Asikanius E, Peyvandi F, Santagostino E, Kruse-Jarres R, Negrier C, Kessler C, Xu J, Windyga J, Shima M, von Mackensen S. Oldenburg J, et al. Among authors: von mackensen s. Haemophilia. 2019 Jan;25(1):33-44. doi: 10.1111/hae.13618. Epub 2018 Nov 14. Haemophilia. 2019. PMID: 30427582 Free article. Clinical Trial.
Health-related quality of life and health status in persons with haemophilia A with inhibitors: A prospective, multicentre, non-interventional study (NIS).
Mahlangu J, Oldenburg J, Callaghan MU, Shima M, Mancuso ME, Trask P, Recht M, Garcia C, Yang R, Lehle M, Macharia H, Asikanius E, Levy GG, Kruse-Jarres R, von Mackensen S. Mahlangu J, et al. Among authors: von mackensen s. Haemophilia. 2019 May;25(3):382-391. doi: 10.1111/hae.13731. Epub 2019 Apr 24. Haemophilia. 2019. PMID: 31016855 Free PMC article.
90 results