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Page 1
Consensus-based care recommendations for adults with myotonic dystrophy type 1.
Ashizawa T, Gagnon C, Groh WJ, Gutmann L, Johnson NE, Meola G, Moxley R 3rd, Pandya S, Rogers MT, Simpson E, Angeard N, Bassez G, Berggren KN, Bhakta D, Bozzali M, Broderick A, Byrne JLB, Campbell C, Cup E, Day JW, De Mattia E, Duboc D, Duong T, Eichinger K, Ekstrom AB, van Engelen B, Esparis B, Eymard B, Ferschl M, Gadalla SM, Gallais B, Goodglick T, Heatwole C, Hilbert J, Holland V, Kierkegaard M, Koopman WJ, Lane K, Maas D, Mankodi A, Mathews KD, Monckton DG, Moser D, Nazarian S, Nguyen L, Nopoulos P, Petty R, Phetteplace J, Puymirat J, Raman S, Richer L, Roma E, Sampson J, Sansone V, Schoser B, Sterling L, Statland J, Subramony SH, Tian C, Trujillo C, Tomaselli G, Turner C, Venance S, Verma A, White M, Winblad S. Ashizawa T, et al. Among authors: heatwole c. Neurol Clin Pract. 2018 Dec;8(6):507-520. doi: 10.1212/CPJ.0000000000000531. Neurol Clin Pract. 2018. PMID: 30588381 Free PMC article. Review.
Patient- and caregiver-reported impact of symptoms in Duchenne muscular dystrophy.
Rosero S, Weinstein J, Seabury J, Varma A, Dilek N, Zizzi C, Coffey M, Greco B, Heatwole J, Alexandrou D, Guntrum D, Ciafaloni E, Heatwole C. Rosero S, et al. Among authors: heatwole c. Muscle Nerve. 2024 May 8. doi: 10.1002/mus.28102. Online ahead of print. Muscle Nerve. 2024. PMID: 38720616
[No title available]
[No authors listed] [No authors listed] PMID: 38340364
Patient-Reported Impact of Symptoms in Crohn's Disease.
Varma A, Weinstein J, Seabury J, Rosero S, Wagner E, Zizzi C, Luebbe E, Dilek N, McDermott M, Heatwole J, Saubermann L, Temple L, Rogoff S, Heatwole C. Varma A, et al. Among authors: heatwole j, heatwole c. Am J Gastroenterol. 2022 Dec 1;117(12):2033-2045. doi: 10.14309/ajg.0000000000001954. Epub 2022 Aug 22. Am J Gastroenterol. 2022. PMID: 36375002 Free PMC article.
P047 The Crohn's Disease-Health Index (CD-HI): Development and Validation of a Novel, Disease-Specific Patient Reported Outcome Measure for Clinical Trials.
Seabury J, Weinstein J, Rosero S, Varma A, Wagner E, Zizzi C, Dilek N, McDermott M, Kaat A, Saubermann L, Temple L, Rogoff S, Heatwole C. Seabury J, et al. Among authors: heatwole c. Am J Gastroenterol. 2021 Dec 1;116(Suppl 1):S12. doi: 10.14309/01.ajg.0000798788.08354.11. Am J Gastroenterol. 2021. PMID: 37461965
Patient-reported impact of symptoms in adrenoleukodystrophy (PRISM-ALD).
Varma A, Weinstein J, Seabury J, Rosero S, Dilek N, Heatwole J, Engebrecht C, Khosa S, Chung K, Paker A, Woo A, Brooks G, Beals C, Gandhi R, Heatwole C. Varma A, et al. Among authors: heatwole c. Orphanet J Rare Dis. 2024 Mar 19;19(1):127. doi: 10.1186/s13023-024-03129-6. Orphanet J Rare Dis. 2024. PMID: 38504253 Free PMC article.
Patient-reported impact of symptoms in lung cancer (PRISM-LC).
Varma A, Weinstein J, Seabury J, Rosero S, Zizzi C, Dilek N, Heatwole J, Baumgart M, Mulford D, Maggiore R, Conrow L, King JC, Wiens J, Heatwole C. Varma A, et al. Among authors: heatwole j, heatwole c. Transl Lung Cancer Res. 2023 Jul 31;12(7):1391-1413. doi: 10.21037/tlcr-22-831. Epub 2023 Jul 11. Transl Lung Cancer Res. 2023. PMID: 37577309 Free PMC article.
Patient-Reported Impact of Symptoms in Fibromyalgia (PRISM-FM).
Weinstein J, Rosero S, Seabury J, Varma A, Engebrecht C, Khosa S, Heatwole J, Dilek N, Kaat A, Matallana LK, Heatwole C. Weinstein J, et al. Among authors: heatwole c. J Rheumatol. 2024 May 16:jrheum.2023-0698. doi: 10.3899/jrheum.2023-0698. Online ahead of print. J Rheumatol. 2024. PMID: 38224983
The Crohn's Disease-Health Index: Development and Evaluation of a Novel Outcome Measure.
Varma A, Weinstein J, Seabury J, Rosero S, Wagner E, Zizzi C, Kaat A, Luebbe E, Dilek N, Heatwole J, Saubermann L, Temple L, Rogoff S, Heatwole C. Varma A, et al. Among authors: heatwole c. J Clin Gastroenterol. 2024 Jan 26. doi: 10.1097/MCG.0000000000001976. Online ahead of print. J Clin Gastroenterol. 2024. PMID: 38277500
93 results