Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation

Search Page

Filters

My NCBI Filters

Text availability

Article attribute

Article type

Publication date

Search Results

13 results

Filters applied: . Clear all
Results are displayed in a computed author sort order. The Results By Year timeline is not available.
Page 1
Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers' perspective: a two-part study.
Duong T, Braid J, Staunton H, Barriere A, Petridis F, Reithinger J, Cruz R, Jarecki J, De Lemus M, Gusset N, Broekgaarden R, Randhawa S, Flynn J, Arbuckle R, Reif S, Yang L, De Martini A, Vuillerot C. Duong T, et al. Among authors: gusset n. BMC Neurol. 2021 Mar 31;21(1):143. doi: 10.1186/s12883-021-02166-z. BMC Neurol. 2021. PMID: 33789607 Free PMC article.
Correction to: Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers' perspective: a two-part study.
Duong T, Braid J, Staunton H, Barriere A, Petridis F, Reithinger J, Cruz R, Jarecki J, De Lemus M, Gusset N, Broekgaarden R, Randhawa S, Flynn J, Arbuckle R, Reif S, Yang L, De Martini A, Vuillerot C. Duong T, et al. Among authors: gusset n. BMC Neurol. 2021 Sep 13;21(1):354. doi: 10.1186/s12883-021-02307-4. BMC Neurol. 2021. PMID: 34517827 Free PMC article. No abstract available.
254th ENMC international workshop. Formation of a European network to initiate a European data collection, along with development and sharing of treatment guidelines for adult SMA patients. Virtual meeting 28 - 30 January 2022.
Walter MC, Laforêt P, van der Pol WL, Pegoraro E; 254th ENMC Workshop Study Group. Walter MC, et al. Neuromuscul Disord. 2023 Jun;33(6):511-522. doi: 10.1016/j.nmd.2023.03.011. Epub 2023 Mar 29. Neuromuscul Disord. 2023. PMID: 37245491 No abstract available.
A Patient-Centered Evaluation of Meaningful Change on the 32-Item Motor Function Measure in Spinal Muscular Atrophy Using Qualitative and Quantitative Data.
Duong T, Staunton H, Braid J, Barriere A, Trzaskoma B, Gao L, Willgoss T, Cruz R, Gusset N, Gorni K, Randhawa S, Yang L, Vuillerot C. Duong T, et al. Among authors: gusset n. Front Neurol. 2022 Jan 17;12:770423. doi: 10.3389/fneur.2021.770423. eCollection 2021. Front Neurol. 2022. PMID: 35111124 Free PMC article.
Patientenpartizipation in der pädiatrischen Versorgungsforschung am Universitätsklinikum Freiburg: von der Projektbeteiligung zum Patientenbeirat.
Langer T, Gusset N, Pechmann A, Stumpe E, Dürr S, Mund A, Matilainen J, Meyer S, Barth M, Haddad A. Langer T, et al. Among authors: gusset n. Z Evid Fortbild Qual Gesundhwes. 2022 Sep;173:98-105. doi: 10.1016/j.zefq.2022.07.002. Epub 2022 Aug 26. Z Evid Fortbild Qual Gesundhwes. 2022. PMID: 36038462 German.
13 results