A Multidisciplinary Approach Improves Sexual Health Care for Youth with Duchenne Muscular Dystrophy

Ellis Barrera; John M Baronas; Sherice Sutherland; Alyssa Rohan; Robin E Margolin; Elizabeth R Boskey; Nora E Renthal

doi:10.1016/j.jpeds.2024.114079

A Multidisciplinary Approach Improves Sexual Health Care for Youth with Duchenne Muscular Dystrophy

J Pediatr. 2024 Apr 29:271:114079. doi: 10.1016/j.jpeds.2024.114079. Online ahead of print.

Authors

Ellis Barrera¹, John M Baronas¹, Sherice Sutherland¹, Alyssa Rohan¹, Robin E Margolin¹, Elizabeth R Boskey², Nora E Renthal³

Affiliations

¹ Division of Endocrinology, Department of Pediatrics, Boston Children's Hospital and Harvard Medical School, Boston, MA.
² Division of Gynecology, Department of Surgery, Boston Children's Hospital and Harvard Medical School, Boston, MA.
³ Division of Endocrinology, Department of Pediatrics, Boston Children's Hospital and Harvard Medical School, Boston, MA. Electronic address: nora.renthal@childrens.harvard.edu.

PMID: 38692562
DOI: 10.1016/j.jpeds.2024.114079

Abstract

We sought to determine the prevalence of sexual health counseling in patients with Duchenne muscular dystrophy in a single-institution setting. Keywords related to sexual health and development concerns were documented at least once for 75% of patients across the duration of their care. Integration of sexual health discussions was facilitated by comprehensive multidisciplinary support, particularly with the inclusion of specialists in endocrinology and adolescent medicine.