Quality of life of siblings of adolescents with severe haemophilia (FRATHEMO): An ancillary study to the TRANSHEMO project
Haemophilia
.
2024 Apr 29.
doi: 10.1111/hae.15023.
Online ahead of print.
Authors
Ngoc Anh Thu Nguyen
1
2
,
Pascal Auquier
1
2
3
,
Any Beltran Anzola
1
2
,
Annie Harroche
4
,
Yoann Huguenin
5
,
Audrey Hochart
6
,
Sandrine Meunier
7
,
Birgit Frotscher
8
,
Philippe Nguyen
9
,
Pascale Schneider
10
,
Claire Berger
11
,
Aurélien Lebreton
12
,
Stéphane Vanderbecken
13
,
Emmanuelle De Raucourt
14
,
Roseline D'Oiron
3
15
,
Caroline Oudot-Challard
16
,
Karine Baumstarck
1
2
3
,
Mohamed Boucekine
1
2
3
,
Clémence Tabélé
1
2
3
,
Natacha Rosso-Delsemme
17
18
,
Thomas Sannié
19
,
Nicolas Giraud
19
,
Hervé Chambost
3
18
,
Noémie Resseguier
1
2
;
FRATHEMO Study group
Affiliations
1
CEReSS - Health Services and Quality of Life Research, Research Unit 3279, Aix-Marseille University, Marseille, France.
2
Methodological Support Unit for Clinical and Epidemiological Research, University Hospital of Marseille (AP-HM), Marseille, France.
3
FranceCoag Network, Marseille, France.
4
University Hospital of Paris (AP-HP), Haemophilia Treatment Centre, Hospital Necker, Paris, France.
5
University Hospital of Bordeaux, Haemophilia Treatment Centre, Bordeaux, France.
6
University Hospital of Lille, Hematology Transfusion, Lille, France.
7
Hospices Civils de Lyon, Haemophilia Treatment Centre and French Reference Centre on Haemophilia, University Hospital, Bron, France.
8
University Hospital of Nancy, Haemophilia Treatment Centre, Nancy, France.
9
University Hospital of Reims, Haemophilia Treatment Centre, Reims, France.
10
University Hospital of Rouen, Haemophilia Treatment Centre, Rouen, France.
11
University Hospital of Saint-Etienne, Haemophilia Treatment Centre, Saint-Etienne, France.
12
University Hospital of Clermont-Ferrand, Haemophilia Treatment Centre, Clermont-Ferrand, France.
13
University Hospital of Reunion, Haemophilia Treatment Centre, Reunion Island, France.
14
Hospital of Versailles, Haemophilia Treatment Centre, Versailles, France.
15
University Hospital of Paris (AP-HP), Haemophilia Treatment Centre, Hospital Bicêtre, Paris, France.
16
University Hospital of Toulouse, Haemophilia Treatment Centre, Toulouse, France.
17
Laboratory of Clinical Psychopathology; language and subjectivity, Research Unit EA 3278, Aix-Marseille University, Aix-en-Provence, France.
18
University Hospital of Marseille (AP-HM), Haemophilia Treatment Centre, Children Hospital La Timone, Marseille, France.
19
French Association for People with Haemophilia (AFH), Paris, France.
PMID:
38684456
DOI:
10.1111/hae.15023
No abstract available
Publication types
Letter
Grants and funding
Bayer Hemophilia Awards Program: Outcomes Research Award, 2017
University Hospital of Marseille (AP-HM): Junior Call for Clinical Research Proposal, 2016