Profiling the medical, functional, cognitive, and psychosocial care needs of adults assessed for home care in Ontario, Canada: The case for long-term 'life care' at home

PLoS One. 2024 Apr 1;19(4):e0300521. doi: 10.1371/journal.pone.0300521. eCollection 2024.

Abstract

Calls to leverage routinely collected data to inform health system improvements have been made. Misalignment between home care services and client needs can result in poor client, caregiver, and system outcomes. To inform development of an integrated model of community-based home care, grounded in a holistic definition of health, comprehensive clinical profiles were created using Ontario, Canada home care assessment data. Retrospective, cross-sectional analyses of 2017-2018 Resident Assessment Instrument Home Care (RAI-HC) assessments (n = 162,523) were completed to group home care clients by service needs and generate comprehensive profiles of each group's dominant medical, functional, cognitive, and psychosocial care needs. Six unique groups were identified, with care profiles representing home care clients living with Geriatric Syndromes, Medical Complexity, Cognitive Impairment and Behaviours, Caregiver Distress and Social Frailty. Depending on group membership, between 51% and 81% of clients had identified care needs spanning four or more Positive Health dimensions, demonstrating both the heterogeneity and complexity of clients served by home care. Comprehensive clinical profiles, developed from routinely collected assessment data, support a future-focused, evidence-informed, and community-engaged approach to research and practice in integrated home-based health and social care.

MeSH terms

  • Adult
  • Aged
  • Cognition
  • Community Participation
  • Cross-Sectional Studies
  • Home Care Services*
  • Humans
  • Ontario
  • Psychiatric Rehabilitation*
  • Retrospective Studies
  • Stakeholder Participation

Grants and funding

This study was funded by an unrestricted grant provided by SE Health to the SE Research Centre as part of the organization’s commitment to impact-oriented health services research as a recognized research institution, learning health system and social enterprise. MS, JLG, and PH receive unrestricted salary support through their roles in the SE Research Centre. GAH receives unrestricted salary support from the Schlegel Chair in Geriatric Medicine at the Schlegel-UW Research Institute for Aging. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.