Case identification of non-traumatic brain injury in youth using linked population data

BMC Neurol. 2024 Mar 2;24(1):82. doi: 10.1186/s12883-024-03575-6.

Abstract

Background: Population-level administrative data provides a cost-effective means of monitoring health outcomes and service needs of clinical populations. This study aimed to present a method for case identification of non-traumatic brain injury in population-level data and to examine the association with sociodemographic factors.

Methods: An estimated resident population of youth aged 0-24 years was constructed using population-level datasets within the New Zealand Integrated Data Infrastructure. A clinical consensus committee reviewed the International Classification of Diseases Ninth and Tenth Editions codes and Read codes for inclusion in a case definition. Cases were those with at least one non-traumatic brain injury code present in the five years up until 30 June 2018 in one of four databases in the Integrated Data Infrastructure. Rates of non-traumatic brain injury were examined, both including and excluding birth injury codes and across age, sex, ethnicity, and socioeconomic deprivation groups.

Results: Of the 1 579 089 youth aged 0-24 years on 30 June 2018, 8154 (0.52%) were identified as having one of the brain injury codes in the five-years to 30 June 2018. Rates of non-traumatic brain injury were higher in males, children aged 0-4 years, Māori and Pacific young people, and youth living with high levels of social deprivation.

Conclusion: This study presents a comprehensive method for case identification of non-traumatic brain injury using national population-level administrative data.

Keywords: Administrative data; Case identification; Integrated data infrastructure; Non-traumatic brain injury.

MeSH terms

  • Adolescent
  • Brain Injuries* / diagnosis
  • Brain Injuries* / epidemiology
  • Child
  • Child, Preschool
  • Databases, Factual
  • Ethnicity
  • Female
  • Humans
  • Infant
  • Infant, Newborn
  • International Classification of Diseases
  • Male
  • Maori People
  • New Zealand
  • Pacific Island People
  • Young Adult