Development of recommendations for a minimum dataset for Identifying Social factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in pain research

Emma L Karran; Aidan G Cashin; Trevor Barker; Mark A Boyd; Alessandro Chiarotto; Vina Mohabir; Jennifer Petkovic; Saurab Sharma; Peter Tugwell; G Lorimer Moseley

doi:10.1016/j.mex.2023.102496

Development of recommendations for a minimum dataset for Identifying Social factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in pain research

MethodsX. 2023 Nov 24:12:102496. doi: 10.1016/j.mex.2023.102496. eCollection 2024 Jun.

Authors

Emma L Karran^{1

2}, Aidan G Cashin^{1

3

4}, Trevor Barker¹, Mark A Boyd^{1

5

6}, Alessandro Chiarotto^{1

7}, Vina Mohabir^{1

8}, Jennifer Petkovic^{1

9}, Saurab Sharma^{1

3

4}, Peter Tugwell^{1

9

10}, G Lorimer Moseley^{1

2}

Affiliations

¹ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration.
² Innovation, Implementation and Clinical Translation (IIMPACT) in Health, University of South Australia, Kaurna Country, Adelaide, South Australia, Australia.
³ Centre for Pain IMPACT, Neuroscience Research Australia, Sydney, New South Wales, Australia.
⁴ School of Health Sciences, University of New South Wales, Sydney, New South Wales, Australia.
⁵ Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, South Australia, Australia.
⁶ Northern Adelaide Local health Network, Adelaide, South Australia, Australia.
⁷ Department of General Practice, Erasmus MC, University Medical Center, Rotterdam, the Netherlands.
⁸ Child Health Evaluative Sciences, Peter Gilgan Centre for Research and Learning, The Hospital for Sick Children, Toronto, Ontario, Canada.
⁹ Bruyere Research Institute, University of Ottawa, Ottawa, Canada.
¹⁰ Department of Medicine and School of Epidemiology, University of Ottawa, Ottawa, Canada.

Abstract

There is increasing recognition of the need for researchers to collect and report data that can illuminate health inequities. In pain research, routinely collecting equity-relevant data has the potential to inform about the generalisability of findings; whether the intervention has differential effects across strata of society; or it could be used to guide population targeting for clinical studies. Developing clarity and consensus on what data should be collected and how to collect it is required to prompt researchers to further consider equity issues in the planning, conduct, interpretation, and reporting of research. The overarching aim of the 'Identifying Social Factors that Stratify Health Opportunities and Outcomes' (ISSHOOs) in pain research project is to provide researchers in the pain field with recommendations to guide the routine collection of equity-relevant data. The design of this project is consistent with the methods outlined in the 'Guidance for Developers of Health Research Reporting Guidelines' and involves 4 stages: (i) Scoping review; (ii) Delphi Study; (iii) Consensus Meeting; and (iv) Focus Groups. This stakeholder-engaged project will produce a minimum dataset that has global, expert consensus. Results will be disseminated along with explanation and elaboration as a crucial step towards facilitating future action to address avoidable disparities in pain outcomes.

Keywords: Consensus methods; Health equity; Pain; Protocol; Social determinants of health.