Objectives: Kidney transplantation offers patients better quality of life and survival compared with dialysis. The risk of end stage renal disease is higher among ethnic minorities and they experience longer wait times on transplant lists. This inequality stems from a high need for kidney transplantation combined with a low rate of deceased donation among ethnic minority groups. This study aimed to explore the perspectives around living donor kidney transplantation of members of the Sikh and Muslim communities with an aim to develop a digital intervention to overcome any barriers.
Design: A qualitative descriptive study using in person focus groups.
Setting: University Teaching Hospital and Transplant Centre.
Participants: Convenience sampling of participants from the transplant population. Three focus groups were held with 20 participants, all were of South Asian ethnicity belonging to the Sikh and Muslim communities.
Methods: Interviews were digitally audio-recorded and transcribed verbatim; transcripts were analysed thematically.
Results: Four themes were identified: (a) religious issues; (b) lack of knowledge within the community; (c) time; (d) cultural identification with transplantation.
Conclusions: Not only is the information given and when it is delivered important, but also the person giving the information is crucial to enhance consideration of live donor kidney transplantation. Information should be in a first language where possible and overtly align to religious considerations. A more integrated approach to transplantation counselling should be adopted which includes healthcare professionals and credible members of the target cultural group.
Trial registration number: NCT04327167.
Keywords: adult nephrology; chronic renal failure; dialysis; end stage renal failure; ethics (see medical ethics); renal transplantation.
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