Service access experiences of immigrant and refugee caregivers of autistic children in Canada: A scoping review

PLoS One. 2023 Nov 9;18(11):e0293656. doi: 10.1371/journal.pone.0293656. eCollection 2023.

Abstract

Primary caregivers are the main mediators of care for children with an autism diagnosis in Canada, and the navigation process to gain access to autism-related services is known to be a major burden. These challenges to service access are compounded for newcomers to Canada, which include immigrants and refugees. The purpose of this scoping review is to describe the available research on Canadian newcomer caregiver experiences navigating and accessing autism-related services. After a systematic search and screening process, 28 studies were included. Data were extracted regarding the populations, study aims, and themes reported. Included studies characterized barriers and facilitators to service access and navigation specific to immigrants, while limited information was available for refugees. Based on the existing literature, the authors provide recommendations for possible research approaches, populations to include, and themes to examine in future research to promote health equity in Canadian autism service access.

Publication types

  • Review
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Autistic Disorder* / therapy
  • Canada
  • Caregivers
  • Child
  • Emigrants and Immigrants*
  • Health Promotion
  • Health Services Accessibility
  • Humans
  • Refugees*

Grants and funding

JM received an Individual Partnership Engage Grant through the Social Sciences and Humanities Research Council (SSHRC) (grant no. 892-2020-3083) (website: https://www.sshrc-crsh.gc.ca/funding-financement/programs-programmes/partnership_engage_grants-subventions_d_engagement_partenarial-eng.aspx) and a SSHRC Individual Partnership Development Grant (grant no. 890-2021-0088) (website: https://www.sshrc-crsh.gc.ca/funding-financement/programs-programmes/partnership_development_grants-subventions_partenariat_developpement-eng.aspx). LMC also received financial support from Wilfrid Laurier University. The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript.