The dynamics of knowledge sharing in chronically ill patient-led online health communities

Int J Health Plann Manage. 2024 Mar;39(2):397-416. doi: 10.1002/hpm.3733. Epub 2023 Nov 9.

Abstract

Patient-led online health communities (OHCs) provide an accessible way for patients to share their knowledge without the constraints of time and distance. By sharing knowledge, patients receive information from other members of the community that expands their knowledge. In this way, knowledge 'grows' and enhances the ability of patients in the community to adequately self-care in everyday life, that is, patient empowerment. This paper aims to understand the dynamics of knowledge sharing in patient-led OHCs. In search of an answer to the research question, the virtual ethnography research design was applied using an observational data collection method. The observational research was conducted in five patient-led OHCs of chronically ill patients on the Lithuanian version of the Facebook Platform. The results of the study provided insight into the dynamics of knowledge sharing by detailing the design of the discussions that took place in the studied communities and by characterising the path of knowledge sharing.

Keywords: empowerment; knowledge sharing; moderation; patient knowledge; patient-led online health community.

MeSH terms

  • Anthropology, Cultural*
  • Chronic Disease
  • Humans
  • Patient Participation* / methods