Using PROGRESS-plus to identify current approaches to the collection and reporting of equity-relevant data: a scoping review

Emma L Karran; Aidan G Cashin; Trevor Barker; Mark A Boyd; Alessandro Chiarotto; Omar Dewidar; Vina Mohabir; Jennifer Petkovic; Saurab Sharma; Sinan Tejani; Peter Tugwell; G Lorimer Moseley

doi:10.1016/j.jclinepi.2023.09.017

Using PROGRESS-plus to identify current approaches to the collection and reporting of equity-relevant data: a scoping review

J Clin Epidemiol. 2023 Nov:163:70-78. doi: 10.1016/j.jclinepi.2023.09.017. Epub 2023 Oct 4.

Authors

Affiliations

¹ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; IIMPACT in Health, University of South Australia, Kaurna Country, Adelaide, South Australia, Australia. Electronic address: Emma.Karran@unisa.edu.au.
² The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Centre for Pain IMPACT, Neuroscience Research Australia, Sydney, New South Wales, Australia; Faculty of Medicine and Health, School of Health Sciences, University of New South Wales, Sydney, New South Wales, Australia.
³ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; IIMPACT in Health, University of South Australia, Kaurna Country, Adelaide, South Australia, Australia.
⁴ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, South Australia, Australia; Northern Adelaide Local Health Network, Adelaide, South Australia, Australia.
⁵ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Department of General Practice, Erasmus MC, University Medical Center, Rotterdam, The Netherlands.
⁶ Bruyere Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Temerty School of Medicine, University of Toronto, Toronto, Ontario, Canada.
⁷ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Child Health Evaluative Sciences, Peter Gilgan Centre for Research and Learning, The Hospital for Sick Children, Toronto, Ontario, Canada.
⁸ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Bruyere Research Institute, University of Ottawa, Ottawa, Ontario, Canada.
⁹ InBalance Physiotherapy, Launceston, Tasmania, Australia.
¹⁰ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Department of Medicine and School of Epidemiology, University of Ottawa, Ottawa, Ontario, Canada.

PMID: 37802205
DOI: 10.1016/j.jclinepi.2023.09.017

Abstract

Objectives: Our objectives were to identify what and how data relating to the social determinants of health are collected and reported in equity-relevant studies and map these data to the PROGRESS-Plus framework.

Study design and setting: We performed a scoping review. We ran two systematic searches of MEDLINE and Embase for equity-relevant studies published during 2021. We included studies in any language without limitations to participant characteristics. Included studies were required to have collected and reported at least two participant variables relevant to evaluating individual-level social determinants of health. We applied the PROGRESS-Plus framework to identify and organize these data.

Results: We extracted data from 200 equity-relevant studies, providing 962 items defined by PROGRESS-Plus. A median of 4 (interquartile range = 2) PROGRESS-Plus items were reported in the included studies. 92% of studies reported age; 78% reported sex/gender; 65% reported educational attainment; 49% reported socioeconomic status; 45% reported race; 44% reported social capital; 33% reported occupation; 14% reported place and 9% reported religion.

Conclusion: Our synthesis demonstrated that researchers currently collect a limited range of equity-relevant data, but usefully provides a range of examples spanning PROGRESS-Plus to inform the development of improved, standardized practices.

Keywords: Equity; Guideline; Methods; PROGRESS-Plus; Scoping review; Social determinants of health.

Publication types

Review
Systematic Review

MeSH terms

Educational Status
Humans
Social Class*