Difficulties in Addressing Diagnostic, Treatment and Support Needs in Individuals with Intellectual Disability and Persistent Challenging Behaviours: A Descriptive File Study of Referrals to an Expertise Centre

Int J Environ Res Public Health. 2023 Jul 14;20(14):6365. doi: 10.3390/ijerph20146365.

Abstract

Service providers may experience difficulties in providing appropriate care to optimize the functioning of individuals with intellectual disability and challenging behaviour. External consultation to identify and address the unmet support needs underlying the behaviour may be beneficial. Applying the multidimensional American Association Intellectual and Developmental Disabilities (AAIDD) model may facilitate this approach. We aimed to describe the content and outcomes of consultation for individuals with intellectual disability and challenging behaviour referred to the Dutch Centre for Consultation and Expertise in relation to the AAIDD model. Interventions were based on the clients' diagnostic, treatment, and support needs and were categorized according to the five dimensions of the AAIDD model. Outcomes of the consultations were assessed based on reports in the file and rated as 'clear improvement', 'improvement' or 'no improvement or deterioration'. In two-thirds of the 104 studied files, consultees were satisfied with the improvement in functioning. Interventions targeted the difficulties of the service providers in supporting their clients and were most often applied within the Health and Context dimensions of the AAIDD model. We may conclude that consultation of an expert team may be valuable to support the care providers, and the use of the AAIDD model may be helpful to address the unmet needs to improve the functioning of individuals with challenging behaviour.

Keywords: AAIDD model on human functioning; challenging behaviour; consultation and expertise; diagnostic, treatment and support needs; intellectual disability; service providers.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Humans
  • Intellectual Disability* / diagnosis
  • Intellectual Disability* / therapy
  • Personal Satisfaction
  • Problem Behavior*
  • Referral and Consultation
  • United States

Grants and funding

This work was supported by ZonMw (Ministry of Health, Care & Sports), The Netherlands (grant number 80-84500-98-400), by IFZ/Healthcare assurances, The Netherlands (grant number 3.678), and by GGZ Drenthe department research, Assen (grant number CVBP.10-2020).