Health Data Democratization in Austria: Patients' Perspective

Stud Health Technol Inform. 2023 Jun 29:305:18-19. doi: 10.3233/SHTI230412.

Abstract

Health data democratization requires a transparent, protected, and interoperable data-sharing environment. We conducted a co-creation workshop with patients living with chronic diseases and relevant stakeholders to explore their opinion on health data democratization, ownership, and sharing in Austria. Participants showed their willingness to share their health data for clinical and research purposes; provided that appropriate transparency and data protection measures are provided.

Keywords: Datasharing; healthcare democratization; mHealth.

MeSH terms

  • Austria
  • Humans
  • Information Dissemination*
  • Ownership*
  • Patients