Local Approval Processes in a Federated and Distributed Research Infrastructure - Lessons Learned from the AKTIN-Project

Stud Health Technol Inform. 2023 May 18:302:362-363. doi: 10.3233/SHTI230141.

Abstract

The AKTIN-Emergency Department Registry is a federated and distributed health data network which uses a two-step process for local approval of received data queries and result transmission. For currently establishing distributed research infrastructures, we present our lessons learned from 5 years of established operations.

Keywords: AKTIN; data sharing; distributed systems; electronic health records; health services research; information networks; routinely collected health data.

MeSH terms

  • Emergency Service, Hospital*
  • Registries