No Transfer Without Validation: A Data Sharing Framework Use Case

Stud Health Technol Inform. 2023 May 18:302:68-72. doi: 10.3233/SHTI230066.

Abstract

Availability and accessibility are important preconditions for using real-world patient data across organizations. To facilitate and enable the analysis of data collected at a large number of independent healthcare providers, syntactic- and semantic uniformity need to be achieved and verified. With this paper, we present a data transfer process implemented using the Data Sharing Framework to ensure only valid and pseudonymized data is transferred to a central research repository and feedback on success or failure is provided. Our implementation is used within the CODEX project of the German Network University Medicine to validate COVID-19 datasets at patient enrolling organizations and securely transfer them as FHIR resources to a central repository.

Keywords: BPMN; Data Sharing; FHIR; Framework; Open Source; Validation.

MeSH terms

  • COVID-19*
  • Electronic Health Records
  • Humans
  • Information Dissemination
  • Semantics