Background Clinical outcomes in gestational trophoblastic disease (GTD) are generally excellent, but GTD is a rare and complex condition that requires specialist information and support to offer a gold standard of care. Across Europe specialist nurses and/or midwives are increasingly common in the GTD multidisciplinary team to work alongside medical professionals in a holistic model of care, however the role is sometimes non-existent or can vary significantly between GTD centres. Objectives The aim of the European Organisation for Treatment of Trophoblastic Diseases' (EOTTD) is to harmonise best practice in Europe. To provide a basis for the European standardisation of best practice nursing care in GTD a group of European GTD nurses/midwives composed guidelines for minimal requirements and optimal nursing care of GTD patients. Methods Members of the EOTTD member countries with nursing representation attended multiple workshops, both virtual and in person, and guidelines were created by consensus and evidence where available. Outcome 16 nurses and 1 midwife from 4 (England, Ireland, Sweden and Netherlands) countries contributed. The group created flow diagrams for treatment and screening patients showing minimum and best practice nursing care for patients with GTD. Conclusion Despite the many different models of care and resources available to GTD services this consensus working group have provided a set of guidelines to drive forward a patient focused holistic model of care for GTD patients.
S. Karger AG, Basel.