Stakeholders' perspectives on transplant metrics: the 2022 Scientific Registry of Transplant Recipients' consensus conference

Jon J Snyder; Cory R Schaffhausen; Allyson Hart; David A Axelrod; Dorrie Dils; Richard N Formica Jr; A Osama Gaber; Heather F Hunt; Jennifer Jones; Sumit Mohan; Rachel E Patzer; Sean P Pinney; Lloyd E Ratner; Dirk Slaker; Darren Stewart; Zoe A Stewart; Sean Van Slyck; Bertram L Kasiske; Ryutaro Hirose; Ajay K Israni

doi:10.1016/j.ajt.2023.03.012

Stakeholders' perspectives on transplant metrics: the 2022 Scientific Registry of Transplant Recipients' consensus conference

Am J Transplant. 2023 Jul;23(7):875-890. doi: 10.1016/j.ajt.2023.03.012. Epub 2023 Mar 21.

Authors

Jon J Snyder¹, Cory R Schaffhausen², Allyson Hart², David A Axelrod³, Dorrie Dils⁴, Richard N Formica Jr⁵, A Osama Gaber⁶, Heather F Hunt⁷, Jennifer Jones⁸, Sumit Mohan⁹, Rachel E Patzer¹⁰, Sean P Pinney¹¹, Lloyd E Ratner¹², Dirk Slaker¹³, Darren Stewart¹⁴, Zoe A Stewart¹⁴, Sean Van Slyck¹⁵, Bertram L Kasiske², Ryutaro Hirose¹⁶, Ajay K Israni¹⁷

Affiliations

¹ Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Department of Medicine, Hennepin Healthcare, University of Minnesota, Minneapolis, Minnesota, USA; Department of Epidemiology and Community Health, School of Public Health, University of Minnesota, Minneapolis, Minnesota, USA. Electronic address: jon.snyder@cdrg.org.
² Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Department of Medicine, Hennepin Healthcare, University of Minnesota, Minneapolis, Minnesota, USA.
³ Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Organ Transplant Center, University of Iowa, Iowa City, Iowa, USA.
⁴ Gift of Life Michigan, Ann Arbor, Michigan, USA.
⁵ Departments of Medicine and Surgery, Yale University, New Haven, Connecticut, USA.
⁶ Department of Surgery, Houston Methodist Hospital, J.C. Walter Jr Transplant Center, Houston, Texas, USA.
⁷ General Public, Living Liver Donor, Osterville, Massachusetts, USA.
⁸ American Association of Kidney Patients, Kidney Transplant Recipient, Tampa, Florida, USA.
⁹ Department of Medicine, Vagelos College of Physicians and Surgeons, Columbia University, New York, New York, USA; Department of Epidemiology, Mailman School of Public Health, Columbia University, New York, New York, USA.
¹⁰ Department of Surgery, Division of Transplantation, Emory University School of Medicine, Atlanta, Georgia, USA; Department of Epidemiology, Rollins School of Public Health, Emory University, Atlanta, Georgia, USA; Department of Medicine, Emory University School of Medicine, Atlanta, Georgia, USA.
¹¹ Department of Medicine, The University of Chicago, Chicago, Illinois, USA.
¹² Department of Surgery, Columbia University, New York, New York, USA.
¹³ Optum Health Solutions, Eden Prairie, Minnesota, USA.
¹⁴ Department of Surgery, NYU Langone Health, New York, New York, USA.
¹⁵ Sierra Donor Services, Sacramento, California, USA.
¹⁶ Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Department of Surgery, University of California San Francisco, San Francisco, California, USA.
¹⁷ Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Department of Medicine, Hennepin Healthcare, University of Minnesota, Minneapolis, Minnesota, USA; Department of Epidemiology and Community Health, School of Public Health, University of Minnesota, Minneapolis, Minnesota, USA.

PMID: 36958628
DOI: 10.1016/j.ajt.2023.03.012

Abstract

In July 2022, the Scientific Registry of Transplant Recipients (SRTR) hosted an innovative, multistakeholder consensus conference to identify information and metrics desired by stakeholders in the transplantation system, including patients, living donors, caregivers, deceased donor family members, transplant professionals, organ procurement organization professionals, payers, and regulators. Crucially, patients, caregivers, living donors, and deceased donor family members were included in all aspects of this conference, including serving on the planning committee, participating in preconference focus groups and learning sessions, speaking at the conference, moderating conference sessions and breakout groups, and shaping the conclusions. Patients constituted 24% of the meeting participants. In this report, we document the proceedings and enumerate 160 recommendations, 10 of which have been highly prioritized. SRTR will use the recommendations to develop new presentations of information and metrics requested by stakeholders to support informed decision-making.

Keywords: Scientific Registry of Transplant Recipients; consensus conference; meeting report; metrics.

MeSH terms

Benchmarking
Humans
Living Donors
Registries
Tissue Donors
Tissue and Organ Procurement*
Transplant Recipients
Transplants*