Difficulties in Caring for the Older Adults: Perspective of Brazilian and Portuguese Caregivers

Nurs Rep. 2023 Feb 16;13(1):284-296. doi: 10.3390/nursrep13010027.

Abstract

This study aims to understand the difficulties in caring for the older adults with functional dependence from the perspective of Brazilian and Portuguese caregivers. This is a study based on the Theory of Social Representations, based on the Thematic Content Analysis proposed by Bardin, carried out with 21 informal caregivers of older adults in Brazil and 11 informal caregivers of older adults in Portugal. The instrument consisted of a questionnaire with sociodemographic data and data on health conditions along with an open interview with guiding questions on the theme of care. Data were analyzed using the Content Analysis technique proposed by Bardin, with the help of the QRS NVivo® Version 11 software (QSR International, Burlington, MA, USA). Three categories emerged from the speeches: "Caregiver burden", "Caregiver support network" and "Older adults resistance". The main difficulties mentioned by caregivers were associated with family articulation in meeting the needs of their older adults, whether due to the excessive demand of tasks, which results in overloading the caregiver, or the behaviors of the older adults themselves, or even the availability of a truly supportive and effective network.

Keywords: aged; caregiver burden; caregivers; functional status.

Grants and funding

This research received no external funding.