Down Syndrome: how to communicate the diagnosis

Ital J Pediatr. 2023 Feb 9;49(1):18. doi: 10.1186/s13052-023-01419-6.

Abstract

Communicating the diagnosis of Down Syndrome to a couple of parents is never easy, whether before or after birth. As doctors, we must certainly rely on our own relational skills, but it is also necessary to be confident in some general indications, which are often overlooked in the strict hospital routine. This article is intended as a summary of the main articles published on this subject in the international literature, collecting and summarising the most important indications that have emerged in years of medical practice all over the world as well as in our personal experience. The diffusion of these guidelines is essential to help the doctor in this difficult task, on which there is often little training, and above all to guarantee to the parents the least traumatic communication possible.

Keywords: Communication; Decision-making process; Down Syndrome; Postnatal diagnosis; Prenatal diagnosis.

Publication types

  • Review

MeSH terms

  • Communication
  • Down Syndrome* / diagnosis
  • Female
  • Humans
  • Parents
  • Parturition
  • Pregnancy