Ethics of Medical Archival Internet Research Data

J Med Internet Res. 2023 Jan 31:25:e43754. doi: 10.2196/43754.

Abstract

Medical research based on internet archive data, which in some ways is quite different from other data-based studies, is becoming more and more common. Despite its uniqueness and the challenges that characterize it, clear ethical rules designed to guide practitioners in this field have not yet been written. This article points to the lacuna that exists in legal and ethical texts today and offers an ethically balancing alternative. Among other features, the balance is based on the famous three laws of robotics by Asimov and a series of values, including transparency, accountability, fairness, and privacy.

Keywords: archival internet research data; ethic; three laws of robotics.

MeSH terms

  • Biomedical Research*
  • Confidentiality
  • Ethics, Medical
  • Humans
  • Internet
  • Privacy
  • Robotics*