A Phenomenological Investigation Into the Meaning of Food in Palliative Care Patients With Anorexia

Am J Hosp Palliat Care. 2023 Nov;40(11):1190-1195. doi: 10.1177/10499091221148141. Epub 2022 Dec 22.

Abstract

Little has been published on the meaning of food to palliative care patients with anorexia. Our study aims to investigate the meaning of food in palliative patients with anorexia. Fifteen patients with anorexia were recruited from the Palliative Care Unit of an acute hospital in Singapore from August 2018 to August 2021. A phenomenological methodology was employed to study the lived experience of anorexia and the meaning of food to palliative care patients. Our study findings revealed that food has social, physical, and emotional meaning in palliative care patients with anorexia. The social meaning of food was the predominant theme. Food was viewed as an important tool to bond and connect with their loved ones. It was perceived to be more important than the food itself and the taste of food was enhanced through social interactions. Food intake was related to physical strength and health status. Patients regarded eating as a way to improve their health status. Emotionally, eating was associated with positive feelings like enjoyment and freedom. Half of our participants felt that anorexia contributed to their low mood. Therefore, unlike the traditional focus of modifying the taste and quality of food in patients with anorexia, the authors recommended a focused assessment and management of the social aspect of anorexia on individual. This is important to mitigate the negative impact of anorexia, thus improving the quality of life and increasing their dignity towards the end of their lives.

Keywords: anorexia; cachexia; cultural; meaning of food; palliative; patient centric; social.

MeSH terms

  • Anorexia / therapy
  • Emotions
  • Hospice and Palliative Care Nursing*
  • Humans
  • Palliative Care* / methods
  • Quality of Life