Autistic women's experiences of self-compassion after receiving their diagnosis in adulthood

Autism. 2023 Jul;27(5):1336-1347. doi: 10.1177/13623613221136752. Epub 2022 Nov 14.

Abstract

Knowledge of autistic individuals' experiences of self-compassion is very limited. This study investigated autistic women's experiences of self-compassion after receiving their diagnosis in adulthood. Eleven autistic women were interviewed about their experiences of receiving their diagnosis in adulthood and their experiences of self-compassion. Systematic analysis of the interview transcripts revealed common themes in the participants' experiences. Participants reported that their autism diagnosis helped them to better understand themselves, particularly when reflecting on problematic past experiences. After receiving an autism diagnosis, participants described being able to relate to themselves with greater self-kindness compared to previous self-criticism; this included allowing themselves to assert their needs and engage in self-care activities. Participants spoke about having difficult social experiences, including feeling pressure to conform to expectations in society and often feeling misunderstood. The findings highlight the barriers autistic women face obtaining their diagnoses and demonstrate the need for autism training for professionals to support early identification. Findings from this study suggest that interventions aimed at developing self-compassion could support and enhance autistic women's well-being.

Keywords: adults; autistic women; diagnosis; health services; interpretative phenomenological analysis; lived experience; qualitative research; self-compassion.

MeSH terms

  • Autism Spectrum Disorder*
  • Autistic Disorder* / diagnosis
  • Emotions
  • Female
  • Humans
  • Self-Compassion