Trading-off privacy and utility: the Washington State experience assessing the performance of a public health digital exposure notification system for coronavirus disease 2019

J Am Med Inform Assoc. 2022 Nov 14;29(12):2050-2056. doi: 10.1093/jamia/ocac178.

Abstract

Objective: Digital exposure notifications (DEN) systems were an emergency response to the coronavirus disease 2019 (COVID-19) pandemic, harnessing smartphone-based technology to enhance conventional pandemic response strategies such as contact tracing. We identify and describe performance measurement constructs relevant to the implementation of DEN tools: (1) reach (number of users enrolled in the intervention); (2) engagement (utilization of the intervention); and (3) effectiveness in preventing transmissions of COVID-19 (impact of the intervention). We also describe WA State's experience utilizing these constructs to design data-driven evaluation approaches.

Methods: We conducted an environmental scan of DEN documentation and relevant publications. Participation in multidisciplinary collaborative environments facilitated shared learning. Compilation of available data sources and their relevance to implementation and operation workflows were synthesized to develop implementation evaluation constructs.

Results: We identified 8 useful performance indicators within reach, engagement, and effectiveness constructs.

Discussion: We use implementation science to frame the evaluation of DEN tools by linking the theoretical constructs with the metrics available in the underlying disparate, deidentified, and aggregate data infrastructure. Our challenges in developing meaningful metrics include limited data science competencies in public health, validation of analytic methodologies in the complex and evolving pandemic environment, and the lack of integration with the public health infrastructure.

Conclusion: Continued collaboration and multidisciplinary consensus activities can improve the utility of DEN tools for future public health emergencies.

Keywords: COVID-19; disease notification; privacy; public health informatics.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • COVID-19*
  • Contact Tracing / methods
  • Disease Notification
  • Humans
  • Pandemics / prevention & control
  • Privacy
  • Public Health
  • Washington