Disparities in Family-Centered Care Among US Children and Youth with Special Healthcare Needs

Paul L Morgan; Eric Hengyu Hu; Adrienne D Woods; Cecelia A Gloski; Yangyang Wang

doi:10.1016/j.jpeds.2022.09.024

Disparities in Family-Centered Care Among US Children and Youth with Special Healthcare Needs

J Pediatr. 2023 Feb:253:297-303.e6. doi: 10.1016/j.jpeds.2022.09.024. Epub 2022 Sep 22.

Authors

Paul L Morgan¹, Eric Hengyu Hu², Adrienne D Woods³, Cecelia A Gloski², Yangyang Wang²

Affiliations

¹ Department of Education Policy Studies, Penn State University, University Park, PA; Population Research Institute, Penn State University, University Park, PA. Electronic address: paulmorgan@psu.edu.
² Department of Education Policy Studies, Penn State University, University Park, PA; Population Research Institute, Penn State University, University Park, PA.
³ Center for Learning and Development, SRI International, Menlo Park, CA.

Abstract

Cross-sectional analyses of 4 nationally representative samples indicate disparities in family-centered care occur among US children and youth with special healthcare needs by race and ethnicity, family income and composition, insurance coverage, and healthcare setting. Measured confounds including children's health and impairment severity do not explain the disparities.

Publication types

Case Reports
Research Support, N.I.H., Extramural
Research Support, U.S. Gov't, Non-P.H.S.

MeSH terms

Adolescent
Child
Cross-Sectional Studies
Ethnicity*
Health Services Accessibility*
Healthcare Disparities
Humans
Income
Patient-Centered Care
United States

Grants and funding

P2C HD041025/HD/NICHD NIH HHS/United States