Sharing good practice in rare diseases: the experience of an innovative hybrid laboratory of narrative medicine and narrative psychology for patients and caregivers living with Behçet's disease
Clin Exp Rheumatol
.
2022 Sep;40(8):1609.
doi: 10.55563/clinexprheumatol/5geh4b.
Epub 2022 Sep 15.
Authors
Diana Marinello
1
,
Arianna Manzo
2
,
Ilaria Palla
3
,
Alessandra Del Bianco
4
,
Marta Mosca
1
,
Domenica Taruscio
5
,
Stefania Polvani
6
,
Rosaria Talarico
7
Affiliations
1
Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy.
2
Psychologist, Psychotherapist, Translational analyst, Rome, Italy.
3
Institute of Management, Scuola Superiore Sant'Anna, Pisa, Italy.
4
Associazione S.I.M.B.A (Associazione Italiana Sindrome e Malattia di Behçet), Pontedera, Italy.
5
National Centre for Rare Diseases, Istituto Superiore di Sanità, Rome, Italy.
6
President of the Italian Association for Narrative Medicine, SIMEN, Italy.
7
Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy. sara.talarico76@gmail.com.
PMID:
36106539
DOI:
10.55563/clinexprheumatol/5geh4b
No abstract available
Publication types
Letter
MeSH terms
Behcet Syndrome* / diagnosis
Behcet Syndrome* / therapy
Caregivers
Humans
Narration
Narrative Medicine*
Rare Diseases / diagnosis
Rare Diseases / therapy