Examining Illness through Pediatric Poetry and Prose: A Mixed Methods Study

Narrat Inq Bioeth. 2022;12(1):53-76. doi: 10.1353/nib.2022.0017.

Abstract

The purpose of this mixed-methods retrospective study was to characterize the linguistic and narrative properties of texts generated by hospitalized pediatric patients who are experiencing significant illnesses. These young writers voluntarily participated in a narrative intervention through a program at a children's hospital that serves diverse urban and rural populations. The primary aim was to use interpretive theoretical analysis and linguistic analysis to test the following hypotheses: (1) hospital-generated texts have linguistic characteristics consistent with texts written to improve health outcomes; (2) stories told by pediatric patients through poetry and prose can be classified using Frank's illness narrative types, serving as a starting point to situate caregivers into the pediatric writer's world in a moment in time; (3) pediatric stories are authentic stories that yield important insights about patients and their relationships with others despite lacking formal narrative elements (e.g., plot) and form.

MeSH terms

  • Caregivers*
  • Child
  • Hospitals, Pediatric
  • Humans
  • Narration*
  • Patients
  • Retrospective Studies