EULAR points to consider for including the perspective of young patients with inflammatory arthritis into patient-reported outcomes measures

Paul Studenic; Tanja A Stamm; Erika Mosor; Ilaria Bini; Nele Caeyers; Laure Gossec; Marios Kouloumas; Elena Nikiphorou; Wendy Olsder; Ivan Padjen; Sofia Ramiro; Simon Stones; Tanita-Christina Wilhelmer; Alessia Alunno

doi:10.1136/rmdopen-2022-002576

EULAR points to consider for including the perspective of young patients with inflammatory arthritis into patient-reported outcomes measures

RMD Open. 2022 Jul;8(2):e002576. doi: 10.1136/rmdopen-2022-002576.

Authors

Paul Studenic^{1

2}, Tanja A Stamm^{3

4}, Erika Mosor^{3

4}, Ilaria Bini^{5

6}, Nele Caeyers⁷, Laure Gossec^{8

9}, Marios Kouloumas¹⁰, Elena Nikiphorou^{11

12}, Wendy Olsder^{6

13}, Ivan Padjen¹⁴, Sofia Ramiro^{15

16}, Simon Stones^{7

17}, Tanita-Christina Wilhelmer^{6

18}, Alessia Alunno^{19

20}

Affiliations

¹ Department of Internal Medicine 3, Division of Rheumatology, Medical University of Vienna, Wien, Austria paul.studenic@meduniwien.ac.at.
² Department of Medicine (Solna), Division of Rheumatology, Karolinska Institute, Stockholm, Sweden.
³ Ludwig Boltzmann Institut für Arthritis und Rehabilitation, Wien, Austria.
⁴ Section for Outcomes Research, Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Vienna, Austria.
⁵ Anmar Young, Rome, Italy.
⁶ EULAR Young PARE, Zürich, Switzerland.
⁷ EULAR PARE, Zürich, Switzerland.
⁸ INSERM, Institut Pierre Louis d'Epidémiologie et de Santé Publique, INSERM, Sorbonne Universite, Paris, France.
⁹ AP-HP.Sorbonne Université, Rheumatology department, Hopital Universitaire Pitie Salpetriere, Paris, France.
¹⁰ Cyprus League Against Rheumatism, Aglantzia, Cyprus.
¹¹ Centre for Rheumatic Diseases, King's College London, London, UK.
¹² Rheumatology Department, King's College Hospital, London, UK.
¹³ Youth-R-Well, Nieuwegein, The Netherlands.
¹⁴ Department of Internal Medicine, Division of Clinical Immunology and Rheumatology, University Hospital Centre Zagreb, Zagreb, Croatia.
¹⁵ Department of Rheumatology, Leiden University Medical Center, Leiden, The Netherlands.
¹⁶ Rheumatology, Zuyderland Medical Centre Heerlen, Heerlen, The Netherlands.
¹⁷ Envision Pharma Group Limited, Wilmslow, UK.
¹⁸ Österreichische Rheumaliga, Maria Alm, Austria.
¹⁹ Department of Life, Health and Environmental Sciences, University of L'Aquila, L'Aguila, Italy.
²⁰ Internal Medicine and Nephrology Unit, Department of Medicine, ASL Avezzano-Sulmona-L'Aquila, San Salvatore Hospital, L'Aquila, Italy.

No abstract available

Keywords: arthritis; outcome assessment, health care; patient reported outcome measures.

Publication types

Letter
Research Support, Non-U.S. Gov't

MeSH terms

Antirheumatic Agents* / therapeutic use
Arthritis*
Humans
Patient Reported Outcome Measures

Substances

Antirheumatic Agents